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Old 07-25-2015, 12:59 PM #1
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
Default Update - gallbladder out

Had my gallbladder op postponed by a week because of someone's emergency and then waited a whole day due to another emergency. Was finally rushed in and had the op. Came to fine, had a routine night in hospital and left next day. Hadn't had my steroid dose (7.5mg) on day of op and thought this was maybe why the SFN flared up so badly overnight - whole body wracked with pain.

Since then it has just flared up again once. The wet crawling feeling in legs has dimmed down and I'm barely aware of the awful burning much - even at night.

However I have had an abscess in my navel under the main laperoscopy wound. I was re-admitted to hospital a week ago last Friday with a horrible open wound and was put on two strong antibiotics - one by IV. Finally my cannulas kept causing phlebitis and they ran out of workable veins so I came home on two lots of oral antibiotics and seeing the nurse daily for wound packing and dressing. All healing well although it will take a while as I have a deep hole where my tummy button was. But no more infection at last.

But I am struggling with a possible peptic ulcer now so plenty to keep me occupied in pain terms!

Now down to 5mg of Prednisolone and meant to be coming off in a few more weeks and scared I'll flare up again as it's part of the inflammatory process for me I think. My rheumatologist seems to have washed their hands of me and so does the neurologist although I'm officially still a seronegative RA patient on their two lists. Does anyone else here have this experience and could the fact that my gallbladder was tucked right touching my liver, with one enormous stone, have been a reason for the SFN?
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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