usually tingling and pins and needles come first, than tickling and prickling pain, in then jabs of pain comes in

Hi. I'm still waiting for my skin punch biopsy, which I get tomorrow, but...for me, tingling and pain came at the same time. The bottoms of my feet burn, and are worse at night.

Thanks for the update dreamer, I hope your biopsy provides some answers.

My experience of the progression of the SFN has been slightly different.
The autonomic symptoms began many years before the sensory symptoms.
The first sensory symptom was numb hands, next came the tingling and burning feet, and later reduced sensation especially in the limbs.
But I haven’t had severe pain.

Is there any correlation between the specific skin biopsy and EMG results and the exact neuropathy’s symptoms ?

From all the stories here, it doesn't seem like skin biopsy results correlate with symptoms. It only gives an idea of the physical damage to the nerves. Some people have bad damage with limited symptoms, and some show no damage but have severe problems.

I haven't seen many comments about EMG results, so not sure on that one.

From what I have read EMG testing is ineffective for SFN.

Madisongirl... You say the burning was bad for several months. Has it gotten better? If so, do u think it was because u started meds? Or did the burning turn into numbness? Or did the burning and stinging just lesson in their own? ( I know u say u still have it but u said it was intense for several minths)

There are probably several reasons why I could be doing a little better now than how I was at the beginning. I've been at this for 1.5 years so I could be getting more used to living in this abnormal state of pain. I'm on more medication now than when I was when it started. (I use a medication app for my iphone to remind me to take all my doses of meds.) Another important factor is I understand what is wrong with me now, which helped reduce some of my emotional stress. I'm a science person and work in a science setting, so I feel like I have a good understanding of the nuts-n-bolts of this disease. This helps me understand what to expect and what the things that I should try to do in attempt to find an underlying cause.

Here is the thing, some days I feel like I can get through the day...other days I tell myself that I need to break down and get a pain doctor. I went through several weeks of feeling awful. The burning on the back of my scalp was getting unmanageable. The pain all over my body was keeping me up half of most nights. Then, I took last week off of work and slept 8 hours each night. This week I'm feeling better, I'm more under control. I'm less stressed. I hurt less. The intensity of this thing can bounce around. It's way too early to know at this point if I'm getting better or worse. I'll probably need another few years or so to determine that.

I think you have the key to this disease. Coping, adjusting and understanding and taking a rational approach stress and exhaustion play a big part

Hello.
First it was pins and needles and pain in my hip when walking. Than after some days it was everything normal. I had a medical diagnostics for some other thing (I had a cold then) ,after that I experienced vertigo, headache (for some hours), strange vision for a minute or two, that all lested two weeks but not everyday, but every fourth day for example. And than finanlly the most annoying feeling ever started in my toes (tingling or vibrating sensation), after three days it spread on my legs from bottom to top in one day. It was very irritating, tingling was strong and vibration feeling also. It stayed on my legs for two weeks, than it went to the back, and back of the head. Now it is everywhere. On my belly, on my arms, but it is especially in my legs. I get also occasiaonyl tingling all over body in different areas, everyday but it is not constant. Vibrating is always present, when I sit down and move my legs or cross my legs or when I am lying in my bed and touching the surface. Has anyone the same expericne with these vibrations? When I sit still I do not feel vibration. It feels like my skin is irritated. Some days are good, some bad. It was almost three weeks and it was real better, almost no weird sensation. Now it all came back It started in April