Thanks for the update dreamer, I hope your biopsy provides some answers.

I am sorry that I was not clear. I do not have complete loss of sensation.

I was trying to get some answers regarding levels of damage. I still have LOTS of pain.

I have no normal sensation anywhere now. It is painful to wear clothes and be touched.

It is a nightmare that I could have never imagined.

Thank you for responding.

My experience of the progression of the SFN has been slightly different.
The autonomic symptoms began many years before the sensory symptoms.
The first sensory symptom was numb hands, next came the tingling and burning feet, and later reduced sensation especially in the limbs.
But I haven’t had severe pain.

Is there any correlation between the specific skin biopsy and EMG results and the exact neuropathy’s symptoms ?

From all the stories here, it doesn't seem like skin biopsy results correlate with symptoms. It only gives an idea of the physical damage to the nerves. Some people have bad damage with limited symptoms, and some show no damage but have severe problems.

I haven't seen many comments about EMG results, so not sure on that one.

From what I have read EMG testing is ineffective for SFN.

Madisongirl... You say the burning was bad for several months. Has it gotten better? If so, do u think it was because u started meds? Or did the burning turn into numbness? Or did the burning and stinging just lesson in their own? ( I know u say u still have it but u said it was intense for several minths)

There are probably several reasons why I could be doing a little better now than how I was at the beginning. I've been at this for 1.5 years so I could be getting more used to living in this abnormal state of pain. I'm on more medication now than when I was when it started. (I use a medication app for my iphone to remind me to take all my doses of meds.) Another important factor is I understand what is wrong with me now, which helped reduce some of my emotional stress. I'm a science person and work in a science setting, so I feel like I have a good understanding of the nuts-n-bolts of this disease. This helps me understand what to expect and what the things that I should try to do in attempt to find an underlying cause.

Here is the thing, some days I feel like I can get through the day...other days I tell myself that I need to break down and get a pain doctor. I went through several weeks of feeling awful. The burning on the back of my scalp was getting unmanageable. The pain all over my body was keeping me up half of most nights. Then, I took last week off of work and slept 8 hours each night. This week I'm feeling better, I'm more under control. I'm less stressed. I hurt less. The intensity of this thing can bounce around. It's way too early to know at this point if I'm getting better or worse. I'll probably need another few years or so to determine that.

I get all kinds of symptoms when I sit burning, pins and needles feel better when I am active, I want to be able to relax. I also get the same symptoms after or during dinner meal

I think you have the key to this disease. Coping, adjusting and understanding and taking a rational approach stress and exhaustion play a big part

Two of the many sensations I have...

I carry my cellphone in a pocket on the side of my left thigh....I feel like my cellphone is vibrating but vibration is turned off on the phone.

And I have to remove pretend rocks from my shoes all the time...Take shoe off...look inside....no rocks. So I call them pretend rocks.

There are many more.