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Old 08-06-2015, 08:43 AM #11
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Thank you McKenzie. I have only been on Lyrica for 1 week and I have had all the symptoms before starting the medication. Only the nerve pain in my teeth is new.
I don't think the lyrica can cause new or more nerve pain, it's probably the progression of what is happening.
Hopefully the attack will settle down after it gets worse.
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Old 08-06-2015, 03:51 PM #12
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Thank you MrsD. Certainly a lot to consider. Will see what the PET scan shows then go from there. Really appreciate your help and advice.
Phil
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Old 08-06-2015, 03:54 PM #13
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Thanks Healthgirl. By the looks of things I have to get the dosage right. Enough to take off the edge but not over balance with the side affects of the Lyrica.
Phil
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Old 08-06-2015, 04:32 PM #14
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Yes I can notice changes in my thinking already, but will try for a while to see where it goes. No he hasn't given me any alternatives as yet if that's what you mean.
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Old 08-06-2015, 05:05 PM #15
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So what were your B12 results exactly in numbers?
Labs still report lows as normal.

In US 400pg/ml is the new low .. Yours may be in
Nmol and need to be converted to compare.
People fall thru the cracks commonly with this test.
Hi Do you have a link for that number please? I can't find anything about it, and my labs just came back "normal" at 316. Thanks.
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Old 08-06-2015, 06:05 PM #16
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Hi Do you have a link for that number please? I can't find anything about it, and my labs just came back "normal" at 316. Thanks.
http://www.aafp.org/afp/2003/0301/p979.html

The Japanese have a cutoff low for B12 over 500 BTW... as they had an epidemic of low B12 that maimed and killed many thousands of people in the late 70's. (it was from a common drug called Vioform, which has been taken off the market here long ago. It is now called clioquinol-- an antifungal and used for traveler's diarrhea in the past. It was very popular in Japan.)

https://chriskresser.com/b12-deficie...-consequences/
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Old 08-07-2015, 03:50 AM #17
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Yes I can notice changes in my thinking already, but will try for a while to see where it goes. No he hasn't given me any alternatives as yet if that's what you mean.
what autoimmune were you tested for?
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Old 08-07-2015, 07:27 AM #18
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Not sure what autoimmune was tested . I have all the lab reports but not sure what I'm looking at. Only going on what the GP says....all clear
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Old 08-07-2015, 06:27 PM #19
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Phil, if you want to you could post the details of the lab reports about autoimmunity here (or by PM if you would prefer).

I (day job stuff) know a fair bit of immunology so might be able to comment.
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Old 08-07-2015, 06:41 PM #20
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Did they test your immuglobin levels for auto-immune testing, the igg, igm etc? One dr did for me and it was part of diagnosing my neuropathy as immune related.
Then other doctors I have seen have said that the high igg and igm are not a concern and they don't even know why they were tested. Makes it confusing when there are so many different opinions concerning neuropathy
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