For those who have followed by story, I thought I'd provide a quick update.

I had a very fast onset of SFN symptoms early in 2014. I went through a metric ton of trouble with my HMO trying to figure out what was wrong with me. I was told fibro, CRPS, anxiety, etc depending on which clinician I saw. I had all the typical SFN symptoms - hot, wet, warm sensations; tinnitus, buzzing, tingling, vibrating, and then moderate to severe burning all over my body along with all types of migrating pain, like many on this message board.

The teaching hospital cleared every thing up and told me I had SFN symptoms and found temperature loss in my arms upon physical exam. The punch biopsy (2 sites) in my legs was normal (performed in house). I was discharged to pain management and left to my own devices to figure out a cause. I also have a vestibular disorder that seems unique; warm sensations in my left ear with disequilibrium. ENT at the teaching hospital didn't have any useful answers other than to do vestibular PT.

I saw a functional medicine doc at the onset of my symptoms in 2014. I followed up again with her this week. She is concerned with my background - I have pretty much lived in the woods and camped in the great outdoors for the last ten years while racing my mountain bike all over Wisconsin and the Midwest. We are known for tick-borne disease in the great state of Wisco....

I had conventional Lyme symptoms back in 2005 several weeks after a deer tick bite (with 4 negative CDC Lyme screening tests). My functional medicine doctor is not a Lyme expert. She does use the ispot Lyme test from Neuroscience, but she wants me to see a Lyme literate clinician....so she didn't test me as the individual she is sending me to utilizes another test.

This Lyme literate clinician is a nurse practitioner and also a naturopathic doc.....it will be interesting for certain. I'm in the process of setting up an appointment and will keep everyone updated.