Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-30-2013, 03:58 PM #1
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SpaceCadet SpaceCadet is offline
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Default Just a little update.

Hi everyone,

It's been quite awhile since I last posted here. I have some good news and bad news to report. The good news is, I got the results back from my second neuropsych test. They showed an overall improvement from the last test a year ago. Apparently, just about everything I've complained about becoming worse over time has improved. I should be excited about this, right? Well, I'm not. I will tell you why in a minute.

The bad news is, I know for a fact, without a shadow of a doubt, my communication skills and memory, especially long term memory has gotten much worse. I know this because my friend and I always talk about stuff we did when we were younger. Just a year ago or even 6 months ago, we sat around and laughed about the stupid stuff we used to do. Well, now when we sit around and talk he will bring up some of the stories we've already reminisced(sp?) about and it doesn't sound familiar to me. A lot of my past, even recent events, have disappeared from my memory. That, or they are taking much longer to retrieve. This makes it impossible to have conversation with people because I can't quickly relate to their story or topic of conversation.

My son is only 22 months old. My memories of him being little have vanished. My girlfriend will tell people stories about stuff he used to do when he was little, and it doean't ring a bell. This really shouldn't be happening to me. This is stuff that can't be detected on a neuropsych test, so I say the test is inaccurate when it comes to my symptoms increasing.

While looking through the neuropsych report, I noticed she said that my reports of stimulation overload were "perceived" as well as my decline of symptoms. So, I said screw it and went to the Las Vegas strip every other day for a week. If this is all in my head, I shouldn't have any problems in casinos or around crowds of people, right? Well that was a big mistake, especially having one beer every other night to ease my mind. I'm a total space cadet today.

Well, that's my update. I don't really know what to make of all this. I'm really depressed that my long term memories are vanishing. I always dreamed of telling my son stories about what he was like as a baby. Looks like it will have to be told by his mother while I sit there and pretend like I know/remember what she's talking about lol.

I hope everyone else is headed down the right track to recovery. You have all been in my prayers.

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 03-30-2013, 05:47 PM #2
Mokey Mokey is offline
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Default

Memory loss is tough. I draw lots of blanks too...but maybe when the brain has to work less to cope woth the other things (noise, etc.), we will be able to retrieve those precious memories.
Your son is lucky to have you there in the here and now....making new memories for both of you! Hang in there.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 03-31-2013, 02:31 AM #3
Mark in Idaho Mark in Idaho is offline
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Long term memories are not usually lost long after an injury. As Mokey said, you are likely under too much stress when you try to remember. You need to learn some memory recall techniques. The stop to think is the first. You friend may be speaking too much. You may have too much background noise. These can all be temporary conditions. You may be struggling with a medication. Benzos are know to cause memory problems. Sleep can also effect memory.

So, relax, stay away from the Strip and beer. But, I don't think I need to tell you that. I am not surprised the NP did not respond to your claim about over-stimulation. That is not something they can measure, just like long term memory so they don't have evidence to convince them. Both of my NP's did not understand over-stimulation issues. One was even in disbelief when I complained about the leaf blower outside the window and the wall of plaques behind his desk.

NP's just interpret the test results with their personal biases included.

You will be fine without their accurate reports.

My best to you.
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