Quote:
Originally Posted by heb1212
Dreamer... I will be interested to hear your doctor's impressions regarding the axonal swellings. I, too, have normal nerve fiber densities from the thigh and calf but axonal swelling noted in the morphology portion of the report. My doctor said that some axonal swelling is not unusual, especially as we age, and since my densities were normal I don't technically have SFN. I have never been fully convinced of that, as I sit here burning from head to toe. All he will concede is nerve pain in a non-length dependent distribution. Let us know!
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Thank you so much for replying. He did say a negative biopsy doesn't mean I don't have it, but we'll see. That's awful that you're burning so much and your doctor won't give you a firm diagnosis. Have you had other tests for SFN? I read something about a sweat test.
I really want to know why my feet burn and tingle and why I have so many autonomic issues and why my backs so bad, but it's exhausting going through lots of testing...I have a feeling my doctor is going to send me for more tests and I do not think I'll hear back from him until next week.
Thank you again very much.
08-19-2015, 03:47 PM
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