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#1 | |||
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Wisest Elder Ever
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I had EMG testing in my arms when I was pregnant.
This showed 80% loss of function in my hands.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | DejaVu (08-23-2015) |
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#2 | ||
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Member
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I haven't even had that or a nerve conduction test , and my muscles do not respond at all to rehab i.e. the joints just get worse because of the added strain caused by lack of response . It seems now also after a PT exam I have Hyper mobility Syndrome too . My feet are swollen constantly and purplish which I am trying to argue is possible PN - but my shrink / doc say otherwise its because I,m not weight bearing ( I am disabled ) though they think its because I have delusional disorder / belief of Ehlers Danlos( look up DSM 5 - long stry ) . This however can no longer be the case with evidence of hyper-mobility all over my body and the fact HSM .JSM is an underlying feature of EDS so I'm hoping it will discharge me from where they've had me locked up for 3 months. In meantime I'm tying to find any excuse I can to show I have pn so I can prove that they rehab they 're trying to force me to do would not only having no effect but also be dangerous to my HMS condition.
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"Thanks for this!" says: | DejaVu (08-23-2015) |
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#3 | ||
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Junior Member
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My story is on my signature line.
I've had 4 EMG's, multiple MRI's, countless injections (epidurals, other joints) but it wasn't until I had a mylogram that the Dr. understood why I was in so much pain. When my back would start screaming the pain in my feet would be magnified making me miserable. It's been 3 months since my spinal fusion (L3-4-5) so much of the pain is gone it is amazing. I still have neuropathy in my feet and still take Gralise, but this is the best I've been in almost 5 years. I've tried to reduce the dose, but wasn't able to but the doctor thinks in time I should be able to. I'm sure my story will be different than most especially since I'm experiencing relief.
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My PN is considered Critical Illness Neuropathy. In October 2010 I left for a golf trip not feeling well, woke up in a hospital 21 days later. I was in an induced coma for treatment of Legioneers Disease. First day out of ICU I noticed the pain in my feet and as they say the rest is history. |
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"Thanks for this!" says: | DejaVu (08-23-2015), KnowNothingJon (08-22-2015) |
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#4 | ||
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Member
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Skin punch biopsy. All other tests normal... Countless blood work, mri of brain and full back, erg, emg/ncv everything came back nirmal.
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"Thanks for this!" says: | DejaVu (08-23-2015) |
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#5 | |||
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Member
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Mainly based on symptoms. Lots of pain. Also, the fact that pain was worse at night than in morning. I was put on gabapentin right away and that eased pain temporarily. So the fact gabapentin worked so well also confirmed Dx.
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Dx neuritis since May 2010. Gabapentin 3600 mg per day. Age 71 |
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"Thanks for this!" says: | DejaVu (08-23-2015) |
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