[dancinglady]

Really that is the answer when you suffer from diabetic neuropathy. I should not be shocked. I worked in healthcare for 12 years. I am brand new to all this. I have been on the Internet for solutions and nothing seems to work. I am already on Cymbalta but there is no relief. Ugh ugh ugh. I have read many posts of sufferers and all I want to do now is end it. Live with burning feet with no relief for the rest of my life. After all my research I see there is no relief. And to top it off this is what my pill mill doctors told me.

[KentuckyRanger]

That is so sad. Like you, I'm on here looking for answers. Lets hope we both find some good answers.

[Jomar]

Is Cymbalta the only med you have tried so far?
If it doesn't work try another med, if MD doesn't want to help you that way then time for a new dr...
and look into alternative therapies if you can.. like -
TENS, IF stim, low level laser, acupuncture, possibly chiropractic if misalignments are a possibility.

Most have to look into maximizing nutrition, reducing / stopping poor health choices or habits.
Sometimes supplements can be helpful.

Be sure to check out the sticky threads at top of the PN main page.

[dancinglady]

Thank you. I have worked with all these docs so they are all alike. When I go on Medicare I can go to John Hopkins and Mayo.

[Ragtop262]

If your PN is the result of diabetes, then tight glucose control is obviously the first step. There's also other drugs available - lyrica, etc. that may help. (But, you probably know that already if your in the healthcare field.)

There's a lot of supplements that can help - particularly with diabetic PN. Have you tried any of these?? Alpha lipoic acid, bentotiamine, B12 (methylcobalamin), methylfolate, acetyl-l-carnitine, CoQ10, fish oil, curcumin, the list goes on...

Check out the supplements and B12 threads. And ask questions here. There's lots of people who can provide advice regarding how to cope.

[janieg]

Originally Posted by dancinglady

Really that is the answer when you suffer from diabetic neuropathy.

In the course of trying to determine for myself the cause of my idiopathic SFN, I've discovered I have glucose issues. There's no way of knowing if they're the cause of it, but one things for sure, my glucose levels spiking to unhealthy levels certainly weren't helping my nerves any.

My symptoms have improved pretty significantly since last year for some reason, but I can't say for sure why. Things I've done: low carb diet, quality Omega 3s, R-Lipoic Acid, benfotiamine, magnesium, milled flax seed.

I'm essentially treating myself as if I'm a diabetic. If any good has come of this, I'll at least hopefully stave off an eventual diagnosis of it.

[Patrick Winter]

Originally Posted by dancinglady

Really that is the answer when you suffer from diabetic neuropathy. I should not be shocked. I worked in healthcare for 12 years. I am brand new to all this. I have been on the Internet for solutions and nothing seems to work. I am already on Cymbalta but there is no relief. Ugh ugh ugh. I have read many posts of sufferers and all I want to do now is end it. Live with burning feet with no relief for the rest of my life. After all my research I see there is no relief. And to top it off this is what my pill mill doctors told me.

It seems that controlling blood sugar whether or not you have diabetes induced neuropathy or diabetes signs seems to keep pain from raging. I dont have diabetes but I still watch my blood sugar because I know what can happen if I let it out of control.

When it comes to cymbalta, gabapentin, lyrica, whatever the case. they really just scramble the brain signals. Even in cases where they may mask the pain or confuse the signals, the side effects from these medications are debilitating in my opinion. I've tried them all. After a while the fact that you cant remember things, stumble around, are dizzy, etc. It's not worth it because of the fact that those are pretty bad and in some cases can put u in situations where you can get seriously hurt.

I would seriously look into supplementation, give them a few months to deliver results. Most of the supplements for SFn also help with blood sugar levels, so its a win win. CHeck my signature and janieg's above me. Most importantly B-12 and R-Lipoic Acid, because there are studies that show they have actually benefitted people with this condition.

This is an awful condition it really is. Try to stay strong and have hope, you'll have bad days and not as bad days.

[dancinglady]

Originally Posted by Patrick Winter

It seems that controlling blood sugar whether or not you have diabetes induced neuropathy or diabetes signs seems to keep pain from raging. I dont have diabetes but I still watch my blood sugar because I know what can happen if I let it out of control.

When it comes to cymbalta, gabapentin, lyrica, whatever the case. they really just scramble the brain signals. Even in cases where they may mask the pain or confuse the signals, the side effects from these medications are debilitating in my opinion. I've tried them all. After a while the fact that you cant remember things, stumble around, are dizzy, etc. It's not worth it because of the fact that those are pretty bad and in some cases can put u in situations where you can get seriously hurt.

I would seriously look into supplementation, give them a few months to deliver results. Most of the supplements for SFn also help with blood sugar levels, so its a win win. CHeck my signature and janieg's above me. Most importantly B-12 and R-Lipoic Acid, because there are studies that show they have actually benefitted people with this condition.

This is an awful condition it really is. Try to stay strong and have hope, you'll have bad days and not as bad days.

What is a signature?

[janieg]

Originally Posted by dancinglady

What is a signature?

The information you see in blue at the bottom of my posts is my "signature" I have configured. It appears on every post I make.

I do not take B12 because I'm not deficient. When I supplemented on my own before seeing the neuro and being tested, my results showed I was way too high. My MMA was also tested, and it was fine.

Is your diabetes under control? I try not to eat anything that causes a glucose spike over 140 as that's the level at which research has shown cellular damage may occur.

[dancinglady]

Originally Posted by janieg

The information you see in blue at the bottom of my posts is my "signature" I have configured. It appears on every post I make.

I do not take B12 because I'm not deficient. When I supplemented on my own before seeing the neuro and being tested, my results showed I was way too high.

Is your diabetes under control? I try not to eat anything that causes a glucose spike over 140 as that's the level at which research has shown cellular damage may occur.

Thanks for your help and explanation.