[rdb48]

A year ago I was golfing and it felt like my sock was rolled up on the bottom of my right foot. It got worse over a couple months as it progressed to outright pain on the ball of my foot when I walked (especially on hard floors) Fast forward a year. Same symptoms in both feet. Can't were socks and only certain sandals allow me to walk fairly comfortably. This month random pin prick sensations began over all body and severe itching on top of left arm. At night toes 2 and 3 curl down. I've seen many doctors including neurologist who said no MS or ALS but beyond that he jsut said you have idopathic neuropathy. Had blood test for know causes-all neg. EMG of right leg abnormal but not awful.

Anyone have a similar start to their neropathy ?? What other tests should I ask for ? I'm 67 and was in very ggod shape until this started

Thanks
Bob

[zkrp01]

Originally Posted by rdb48

A year ago I was golfing and it felt like my sock was rolled up on the bottom of my right foot. It got worse over a couple months as it progressed to outright pain on the ball of my foot when I walked (especially on hard floors) Fast forward a year. Same symptoms in both feet. Can't were socks and only certain sandals allow me to walk fairly comfortably. This month random pin prick sensations began over all body and severe itching on top of left arm. At night toes 2 and 3 curl down. I've seen many doctors including neurologist who said no MS or ALS but beyond that he jsut said you have idopathic neuropathy. Had blood test for know causes-all neg. EMG of right leg abnormal but not awful.

Anyone have a similar start to their neropathy ?? What other tests should I ask for ? I'm 67 and was in very ggod shape until this started

Thanks
Bob

get cleared for Type 2 Diabetes? Also do you know your B-12 level? Needs to be 400+. Good Luck, Ken in Texas.

[rdb48]

No diabetes. Vit B 480. I still don't trust the negative Lyme test. Thanks for your reply

[zkrp01]

Originally Posted by rdb48

No diabetes. Vit B 480. I still don't trust the negative Lyme test. Thanks for your reply

If all the usual suspects have been rounded up and eliminated, many here DX as Idiopathic. That means no known source or causal factor. If you have lurked around and read, you know that PN can be triggered by many things. Vaccine shots, Industrial solvents, Chemotherapy, Spine & Joint trauma, Floroquinilone Antibiotics,environmental contaminants plus Tick bites. Lyme testing, as I recall, is not the most foolproof thing. Good Luck, Ken in Texas. P.S. These are not all the things that bring PN, just the ones that jumped to the front of my mind.

[KnowNothingJon]

Ken I read your list of neuropathy causes like the secretary in Ferris Beuller's Day Off listed the types of people who liked Ferris.

Sadly, this is not a righteous illness, does seem to afflict some nice people, though.

It brought a smile to my face, thought I'd share.

[mrsD]

Originally Posted by rdb48

No diabetes. Vit B 480. I still don't trust the negative Lyme test. Thanks for your reply

This is not a sterling result for B12. If you were taking any vitamins and did not stop them several days before the test, then this may be an artificial high.

We keep out B12 at around 1000 here. If you have the methylation mutations, which are common, then your reading may not reflect ACTIVE form of B12.

So you might consider 5mg of methylcobalamin daily on an empty stomach and see if you notice improvements...3 months should be long enough a test to see.

Methyl form is the active form and best to use. It is only pennies a day.

This is our B12 thread...
http://neurotalk.psychcentral.com/thread85103.html
Methyl form is now at Costco, and some stores like Walgreen's.
Online also at Amazon or iherb. It works out to pennies a day for most brands now.