Quote:
Originally Posted by Healthgirl
It can appear in any part/s of the body or all of your body.
I can't believe that doctor told you it could not be SFN because you didn't have pain in any one specific place.
Mine was in my upper body before it spread like wildfire to my whole body. You need a new doc. Do you have episodes of numbness, tingling, wet drops, shooting/ throbbing pain?
Some of the doctors aren't schooled on non length dependent SFN. They look for the typical stocking and glove pattern which is more common.
The only problem is, you already have the meds so there isn't much they can do about it except give you name for it.
Have you had a spinal tap, autoimmune blood work up, full body/ brain MRI? Have you been heavy metal tested? Have you had a work up of vitamin/ minerals?
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I do have all of those symptoms except for the wet drops. I don't know why he couldn't do the biopsy where I DO have pain. What is non length dependent SFN? I actually don't take anything but natural stuff so far. Sometimes I use the Tramadol but it really just makes me 'care less' about the pain-doesn't actually take it away. I have considered lyrica/neurotin, but trying to hold off. I was heavy metal tested and showed a little high for lead and antimony. Did chelation for 3 months which didn't help me at all. I haven't had a spinal tap. Is that real painful? I'm going to get a new neurologist! I'm also seeing an allergy doc this month-my physical therapist suggested this. Do you know what caused your neuropathy?
09-11-2015, 08:25 PM
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