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Old 10-05-2015, 05:25 AM #1
Blairzo Blairzo is offline
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Join Date: May 2015
Location: Scotland
Posts: 58
8 yr Member
Blairzo Blairzo is offline
Junior Member
 
Join Date: May 2015
Location: Scotland
Posts: 58
8 yr Member
Default After reading for days...

I'm sitting thinking I have probably had issues for sometime but ignored them as from my back or whatever.
My house seems to have contributed to my exposure to lead and what it does I'm not sure but it's not good for me.
My family have thyroid problems, my mums didn't work properly as a child and gave up completely in her 30's. My gran aunt mum great aunt etc all have b12 supplements either by injection or tablets, my brother has other b vitamins.
My great aunt had MS and died when I was younger.
My mum has pemphigus (mmp) my son had ITP and my daughter has Raynauds and my dad type 1 diabetes.
I have taken ppi for years for the side effects of naproxen/volterol/brufen as they made me sick to the stomache and gave me awful pain. After two years of being anaemic ( was 6.4) they took me off all anti inflammatory meds.
I was given lyrica and amitryptiline which made me very dizzy and spaced so they changed it to nortyrptiline but I couldn't cope with the balance issues, it was put down to my head injury expanding the effects, they wanted me to take anti sickness things for vertigo but I chose to not take the nortriptiline because I don't like taking drugs for side effects of drugs.
So now I'm on lyrica and solpadol ( paracetamol 500/codeine30) and have been for about 4 years I take 100mg morning and night and take solpadol up to four times a day as required.
I'm a bit baffled really as I am getting the electric shock pains first, then the constant tingle pins and needles, I got it in the saddle area first then my feet. I got the pains then loss off control of bladder and not constant control of bowel, then the feet started with the shocks pins needles burning, joint pains in big toes, pain increased in middle three toes as big toe went numb then outside of sole of foot started burning. I have nerve pain in my face which started after I got injured by a child at work.
So with already being medicated could I have missed the early signs? My rubbish genes seem to point the finger at B12 may be the problem.
So reading and chatting to my mum seems I may be getting to the bottom of it.
My mum had neurological issues for years and it was put down to her bad back from lifting my brother for years, she finally got an endocrinologist this February and is being sorted out with vit d b12 and t3 and t4. She is feeling so much better. I hope I get a quick fix.
Really feeling hopeful now and not worried so much about the appointments and tests. I know I can get b vitamins without a prescription so am a lot more relaxed 😊
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Old 10-05-2015, 08:07 AM #2
Ragtop262 Ragtop262 is offline
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Join Date: Mar 2015
Location: Midwest
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Ragtop262 Ragtop262 is offline
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Wow, that's quite an unfortunate family history. Unfortunately, none of us can control our genetics. Did they do vitamin D and B-12 testing on you yet?

The vitamin D and B-12 (methylcobalamin) supplements are pretty cheap and don't hurt anything if you take them and don't need it. (It is best to get tested first, to get baseline numbers - but on the other hand, you don't want to hold off on the supplements if you need them and your nerves are getting damaged worse by the day.)

With that family history, you might also want to consider genetic testing for the gene mutations affecting methylation. (If it's available in your country.) I had the testing done and found that I do have several mutations. I'm taking supplements to help with that, and seem to be doing better (or at least not any worse) since starting on them.

Good luck with finding and treating your problem.
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"Thanks for this!" says:
Blairzo (10-05-2015)
Old 10-05-2015, 11:11 AM #3
zkrp01 zkrp01 is offline
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zkrp01 zkrp01 is offline
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Thumbs up B-12 plus folic acid

Foltanx is a cheap food grade supplement. My Endocrinologist prescribed for me to take it for as long as I am still taking Metformin(diabetic glucose control). B-12 deficiency symptoms mirror Neuropathy in many ways but in the worst scenario, your legs quit working like they used to. If your b-12 is below 400 you might look into or ask your Dr. what he would recommend. Be sure if you self medicate for b-12 use the methylated form. If you have been reading these posts you probably already know this. Good Luck, Ken in Texas.
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Blairzo (10-05-2015)
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