first symptoms the pain is a lot more manageable. I still keep a RX of Tylenol with codiine to take on road trips. You might hang in there with the Gaba, maybe your stomach will get used to it. Good Luck, Ken in Texas.

Have any of you tried benfotiamine? It's a form of B-1 that's available in the United States now. They've been using it in Japan for neuropathy pain for years. I know it's available from iHerb and Amazon, and I got a great deal of relief when I first tried it. I now use it twice a day, 150 mg each time. The brand I order is Doctors Best from iHerb.

I have not tired Benfotaimine. Looks well worth taking. Thank you!

Cliffman

Thanks for the encouragement Ken!

I am a CPA. I work seasonally in tax, usually January - July. I sit at a desk all day so it's not too bad, but I am usually really looking forward to July.

If it wasn't for these breaks I don't think I could do it. The pain level is just too much.

I'm happy to hear you get a break...it's not easy at all trying to work.

Cliffman

I've been taking Doctor's Best Benfotiamine 150 for a few months and I truly believe it has helped with my SFN symptoms. The dosage according to what I read on a post I believe from MrsD is 300mg for the 1st month and 150mg after.

I also take Gabapentin (3) 100mg capsules WITH dinner. I can make it through the day but night can be bad. It took 2 weeks for my body to get use to it. I'm sure it helps with the burning and twitches because about an hour after I take it my sensations are considerably milder. If not for that I would get off of it.

I also use Aspercreme with Lidocaine for burning/pain and Morton's Epsom Salts for twitches. Also Topricin Cream is good.

I am looking into getting a compounded topical cream that includes Gabapentin and some other ingredients. Your doctor would need to be involved with that. There are posts on this if you search "compounding cream"

I didn't respond initially because I am retired and didn't fit into "Full or part time?" I was a teacher and if this had started when I was working I can't imagine what I'd have done. Probably been fired! Sleep is the minimum requirement to being surrounded by middle school students all day long

Hi Pinkynose,

Any side effects from taking the Benfotaimine?

Glad to hear you're retried...that must help a lot.

Cliffman

No side effects. It is not an immediate fix. This disease requires extraordinary patience. When this all began I started trying every supplement suggested I was so desperate. I now take very few. This is one of them. You can get more info on Benfotamine under "Supplements for PN"