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Old 10-28-2015, 02:46 PM #1
LouLou1978 LouLou1978 is offline
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Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
LouLou1978 LouLou1978 is offline
Member
 
Join Date: Feb 2015
Location: UK
Posts: 153
8 yr Member
Default Update - Inflammatory Neuropathy

Hi there,

Its been a while since I've been on here.

I have NLD Small fiber neuropathy confirmed by punch biopsy . Mine was unusual showing (increased fiberes). In September my neurologist put me on a 5 day course of methylprednisolone, I don't think this helped.

I have just met up with him today, he is pretty sure my neuropathy is inflammatory/autoimmune, so is putting in an application for ivig, (NHS). He is quite hopeful this will be accepted, otherwise had a plan B.

He has a couple of ladies at his main neurological hospital in London who have had really good results, they too have NLD SFN.
His application is stating it is 'inflammatory neuropathy'. Keeping fingers crossed this will be accepted, not that easy through NHS, all other blood tests have come back normal.
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