Hi there,

Its been a while since I've been on here.

I have NLD Small fiber neuropathy confirmed by punch biopsy . Mine was unusual showing (increased fiberes). In September my neurologist put me on a 5 day course of methylprednisolone, I don't think this helped.

I have just met up with him today, he is pretty sure my neuropathy is inflammatory/autoimmune, so is putting in an application for ivig, (NHS). He is quite hopeful this will be accepted, otherwise had a plan B.

He has a couple of ladies at his main neurological hospital in London who have had really good results, they too have NLD SFN.
His application is stating it is 'inflammatory neuropathy'. Keeping fingers crossed this will be accepted, not that easy through NHS, all other blood tests have come back normal.

Good luck on acceptance!

Hi Baba 222,

Thank you

loulou

Hi LouLou,

Let us know if you get accepted, and how the treatments work. I'm wishing you the best of luck

Praying you get the treatment and please let us know how it goes in the future.

Cliffman

Thank you, if this gets accepted I will let you all know. I will be over the moon if it does!

One of my neurologists tried to find a way to get me approved for it. He said he has major success with it for autoimmune neuropathy. Unfortunately I don't qualify. I am still dreaming of a day that this resolves itself. I hope you get it. Good luck!

Thank you Healthgirl, I hope you still continue to improve, I am sorry you couldn't get ivig approved, it is supposed to work for NLD SFN. From what I understand NLD SFN is autoimmune/inflammatory in a lot of cases.