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Old 10-29-2015, 02:28 PM #1
Ragtop262 Ragtop262 is offline
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Ragtop262 Ragtop262 is offline
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Originally Posted by LouLou1978 View Post
Just to say thank you to everyone for all the support. While going through this for the past year I have had a horrific experience not just with the SFN but from 2 particular members of my family. My sister and her vile husband. I was told by my sister on a number of occasions that her and her husband thought it was ridiculous that I was seeing a professor in London, and that her husband thought it was 'funny' and that her husband had looked SFN up on the internet and it WASNT painful. When I actually got my diagnosis, she came round to my house and snatched the diagnosis letter out of my hand demanding that she take this to be photocopied to show her Dr. She was ranting and raving at me infront of my 3 year old. Shouting at me in my hospital bed after a bodged lumber punch, I now have nothing to do with them and never will. Luckily my husband has been great so am blessed to have them
That's just sad. With SFN, the old adage is so literally true: "Don't criticize me until you've walked a mile in my shoes." I hope things improve for you soon.
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St George 2013 (10-29-2015)
Old 10-29-2015, 03:49 PM #2
bluesfan bluesfan is offline
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LouLou

Sorry to hear of your lack of support from your sister and BIL. That's just plain mean. You don't need the stress of having to put up with that on top of your pain. I hope you didn't let her take your diagnosis letter - she has no right to do that let alone show it to another person or even to discuss your case with another medical person without your consent, Grrrr

I'm glad you have a supportive husband and hope you get to spend some quality time with him and your daughter.

All the best for your application for the IVIG therapy.
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KnowNothingJon (10-30-2015), LouLou1978 (11-01-2015), St George 2013 (10-30-2015)
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