Hi all, I have a follow up neurology appointment next week. All things sfn march on exceptionally fast. My experience of the nhs is often to march you out the door with more pain meds as quickly as possible. With that in mind I need to focus in on what might help the most. Hope you can advise me...

I have one other rheumatological autoimmune and since this time last year sfn pain started in legs. It is now full body, no place spared. Punch biopsy confirmed in Feb this year. Biopsy was not indicative of ganglionopathy at that stage. I have been tested for celiac, Fabry's disease, voltage gated sodium potassium channels and all clear. Negative for ANA and no indication of sjorgens at this stage. Forgot to add that I've had glucose levels tested, fasting glucose test and B12 and Vit D and B6 tested.
I have looked at the blood testing charts and there is no way I will get to have all these tested. Does anyone have advice on other key ones that may help in my case? Lumber puncture for example or amyloidosis?
I have noticed significant loss of muscle mass in my buttocks, legs and feet where it is worst. However 2 nerve conduction tests and an emg ( needle in leg muscle to test strength) have all come back OK. I'm being encouraged to believe it's lack of exercise. It is not simply that at all, my legs are half the size throughout.
My neuro says he wants to submit an application for ivig but feels it will get rejected and more evidence be required. I'm losing the will here as most people don't ever get the evidence. They don't use ivig for sfn as a matter of course in this country so a positive biopsy is certainly not enough. Nor is having clear autoimmune issues elsewhere.

I also have what I am convinced are autonomic symptoms, heart flutters, palpitations, dizziness, always have stomach issues, continued feeling of nervousness.
There are probably loads of tests that would be considered but my extensive experience has shown me that you often have to fight tooth and nail to get even one diagnostic test.

Once the nerves are so damaged is that the end of hope that muscle mass can be regained? I have strength still, they tire more easily but its the mass that has gone. It makes me feel really self conscious on top of everything else.