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Lyme Disease - two personal stories

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Old 12-21-2015, 09:05 PM #11
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Watching one of his videos, I noticed someone had posted this link: https://www.sciencebasedmedicine.org...e-does-anyone/

The rest was positive, not that I looked at it all. Honestly, over-diagnosis is perhaps better than ignoring the patient and saying 'I don't know.'
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Old 12-21-2015, 09:20 PM #12
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Quote:
Originally Posted by DavidHC View Post
Watching one of his videos, I noticed someone had posted this link: https://www.sciencebasedmedicine.org...e-does-anyone/

The rest was positive, not that I looked at it all. Honestly, over-diagnosis is perhaps better than ignoring the patient and saying 'I don't know.'
I'm not a big fan of sciencebasedmedicine.org. They are very biased on any given topic and if there isn't a big Phase III clinical trial on the issue, then they disagree and jump to calling people quacks. The don't take really deep dives into many of the issues they blog about. If you read the comments on any of the blog posts from their website, they are usually pretty nasty.
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Old 12-21-2015, 09:28 PM #13
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Yeah, no kidding: very nasty!


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Originally Posted by madisongrrl View Post
I'm not a big fan of sciencebasedmedicine. They are very biased on any given topic and if there isn't a big Phase III clinical trial on any given issue, then they disagree and jump to calling people quacks. The don't take really deep dives into many of the issues they blog about. If you read the comments on any given blog post from their website, they are usually pretty nasty.
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Old 12-21-2015, 09:40 PM #14
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Default Lyme Disease - two personal stories
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Yeah, no kidding: very nasty!
I know, right? They make good points in some of their blog posts, but then they throw the baby out with the bath water. I had to unsubscribe from their blog. What they don't understand is that lack of proof, is not necessarily proof against something. But those blog comments will provide you with endless entertainment.
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Old 12-21-2015, 09:55 PM #15
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Haha - they often do...

Yes, this is important: lack of evidence for something does not mean evidence against that thing, especially when the diagnostic tools are severely lacking, but real lives are at issue. I try to teach my students this basic point in logic from the first day. It's unfortunate and myopic, a fallacy really.

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I know, right? They make good points in some of their blog posts, but then they throw the baby out with the bath water. I had to unsubscribe from their blog. What they don't understand is that lack of proof, is not necessarily proof against something. But those blog comments will prove you with endless entertainment.
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Old 12-21-2015, 10:13 PM #16
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http://lymemd.blogspot.com/2013/04/b...-evidence.html

A great post from Dr. Jaller on the current state of clinical diagnosis and evidenced based medicine. I love it!
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Old 12-22-2015, 11:57 AM #17
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Dead on! Love it!


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Originally Posted by madisongrrl View Post
http://lymemd.blogspot.com/2013/04/b...-evidence.html

A great post from Dr. Jaller on the current state of clinical diagnosis and evidenced based medicine. I love it!
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Old 12-22-2015, 11:59 AM #18
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Thank you. So the problem is the system, not the physician. What a shame. In Canada, we can't get the extensive antibiotic treatment, and physicians have lost their license. I'm not sure what to think, but if physicians are restricted in methods that work, I think that's moronic. Unfortunately, if it turns out to be Lyme in my case, which I don't suspect now (though as mentioned I do suspect some infection or infestation), I'll have to figure out a way to get the money. Quite sad that money h is what's at stake.
As someone with sensory and autonomic neuropathies because of drug toxicity, I am concerned about prolonged use of antibiotics....many are neurotoxic in the short run. In addition, this approach is not (yet) supported by science-based evidence. I'd really hate to read of people having to contend with with symptoms like mine on top of what already ails them.
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Old 12-22-2015, 02:25 PM #19
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Neuropathy and Lyme

http://lymemd.blogspot.com/2013/04/p...mmon-lyme.html
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Old 12-22-2015, 10:27 PM #20
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I sent a request to ILADs to see if there was a LLD closer than Dr. Jaller in Germantown, MD. Boy do I feel like a dope. This guy is 25 miles from me.

http://www.lymebook.com/lyme-disease-solution

It's nice to know he's option if I decide to go that route.

How are you feeling now, MadisonGirl?
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