Originally Posted by Rancar

If it makes you feel better none of the symptoms you describe are things I encountered with PN.

Mine started with a sensation very similar to a cell phone buzzing inside my ankle. It would buzz for about 1 second every 5 seconds and would continue 24/7. That progressed into pins and needles / burning sensation.

It really sounds like finding a good doctor/neurologist is your best bet. They will help you narrow down possibilities. I'm 18 months into my symptoms and still don't have a positive diagnosis, so be don't stress out about not knowing right away.

Finding a way to calm down and de-stress is critical. While they say stress can't trigger a flare up on it's own, it can exacerbate your existing symptoms and make life miserable for yourself

Originally Posted by Noey

Thanks so much! The cellular phone is quite similar to my twitching actually. It's like my muscles vibrate. It happens so fast I can't even observe them. I'm so scared it might be a brain tumor, ALS or MS. But I totally agree on the fact that I need to destress and not think about it so much. Rancar, were you tested for vitamin deficienies too?

Originally Posted by Rancar

I've been tested for vitamin deficiencies, blood sugars, thyroid, Lyme disease, heavy metals, MRIs of my brain and spine, nerve conduction velocity tests, pin pricks etc.

Hopefully you will get tested and discover something early that is treatable and reversable.

Originally Posted by Noey

What, and they still haven't figured out what's wrong with you as well? This is making me so anxious. I've had so many sleepless nights.

Originally Posted by Rancar

They don't have an exact diagnosis in the sense of a name to my disease, but now I know it is an auto-immune deficiency that causes my body to get confused and attack nerve endings, likely as a result of getting vaccinations last year. Putting an exact name to it isn't going to change the treatment options in any meaningful way.

Believe me, I too have many sleepless nights worrying about the progression of my condition.

The sleepless nights and constant worrying don't help me at all, and I doubt they are helping you either. By getting the tests and seeing qualified professionals you are doing the right thing. Worrying about it now isn't going to change a thing and it could hurt by slowing down your bodies ability to heal.