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Old 04-25-2016, 12:39 PM #1
Itneverends Itneverends is offline
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Location: Midwest USA
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8 yr Member
Itneverends Itneverends is offline
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Join Date: Jan 2016
Location: Midwest USA
Posts: 11
8 yr Member
Default sfn

I was negative for sfn. My B6 levels were 74. I'm recovering. Shocking and disturbing....all of this!!!! Such betrayal by science. I was taking 25-50 mg....per a doctor.....well below USA upper standards but well above Europe. Time for some studies!!
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Old 04-27-2016, 07:26 PM #2
Summerfun Summerfun is offline
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Location: New Hampshire
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Summerfun Summerfun is offline
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Join Date: Dec 2014
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Default B6 and lack of education

Happened to me too but I had already been diagnosed with idiopathic NLD SFN. Ten months after I was diagnosed I sought out a LLMD because I learned Lyme could cause it. My 2nd Elisa came back negative but my Western Blot IgM was positive. My LLMD started me on B6 + B Complex as well as antibiotics. Who puts a person on B6 who already has neuropathy without testing their level first? I was on 250mg daily for one year when I learned it could cause SFN and asked to have my level tested. She thought it was really unnecessary as it is a water soluble vitamin and "doesn't build up in your system". Wrong....my level came back as 53 with normal at 21 for the max. So if the Lyme did cause my SFN any chance of regeneration after antibiotics was eradicated by the toxic B6. More education is needed!. I see my neurologist next Tuesday and he is going to be mad!
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