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Old 03-03-2016, 05:43 PM #11
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ShaggyChic_1201 ShaggyChic_1201 is offline
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Join Date: Sep 2014
Location: Midwest, USA
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8 yr Member
ShaggyChic_1201 ShaggyChic_1201 is offline
Junior Member
ShaggyChic_1201's Avatar
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
8 yr Member
Default Starting to despair

Quote:
Originally Posted by MikeK View Post
My responses - I have PN from a critical illness, when the pain in my back intensified it made the pain in my feet & legs even worse. The pain I had versus what the MRI showed were two different things. When I found I wasn't a candidate for a spinal cord stimulator I went to a neurosurgeon and have my answers for your first 2 questions.

1. Mylogram - they inject fluid into your spine they take x-rays and a CT scan then you lay still for 2-3 hours. It hurt no more than any other injections in your back. I had numerous epidurals prior to this so it wasn't a new feeling. This test was the test that provided my neurosurgeon the answers to my back pain, in much greater detail than an MRI. It confirmed DDD an led to spinal fusion.

2. I've had 4 EMG's in my opinion there is too much human interpretation, in my case it showed pain from PN but not from any particular area of my back. The dr's like this test, I think it might have value if done by the same person the next time it is done, that way they can compare it to your results and not the test group.

3. I have no reference, I went to the largest teaching hospital system in my area for my neurosurgeon. My pain Dr is actually from a a different hospital system.

While I still have PN and take Gralise (time release gabapentin) my back pain is pretty much gone.

Hope this is some help for you.
I appreciate the discussion. I'm really scared. Three months ago I felt only mild pain in my fingertips. Now it's excruciating all the way up my arms. I work full-time and grit my teeth until I can't stand it (usually noon) and take something for the pain. I can't get an app't with a neurologist for another month and by then I'm afraid it will spread to my chest or face.
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