Thank you for your reply Rancar...

Have you still been able to work?

And I've heard of people going overseas for medical procedures that are too expensive in United States... I'm wondering if any type IVIG treatment is available maybe Thailand or Costa Rica or some other place… I know that these countries do offer other medical procedures at lower cost than the US and I'm wondering if someone has investigated that avenue.

I have an appt with my neurologist this afternoon and will ask him.

Sven

Did they check your b6 level???? If not, I would run and have it pulled privately. Were you ever taking b6 in a multivitamin or anything? Next to diabetes, b6 toxicity seems to be the most common causes of neuropathy, especially very sudden neuropathy.

Make them pull your b6! Especially because you were having panic attacks. I had the worst panic attacks ever when I was toxic with it. It also spread all over my body with twitching and vibrations from head to toe. Symptoms in your scalp signify probably ganglion damage. There are few toxic substances that cause neuronal and ganglion damage, b6 being one of them.

Yes. My case is less severe and likely a different mechanism. I switched to a standing desk and stood during all meetings. Personally, I found if I bounced around on my feet/walked constantly it reduced the burning and tingling to manageable levels.

My main issue is at night. I'm fortunate I can continue to work. I hope your underlying condition is alleviated and you too can return to feeling like a semi-normal person.

--to see if there are cervical spine issues, given the start of your symptoms and the progression from up to down?

The unfortunate thing is that problems with spinal cord or nerve root compression can almost exactly mimic those of peripheral neuropathies, especially when the onset is not slow or gradual. I know I have had symptoms that have been very hard to distinguish--right now I am in the middle of a painful, burning upper body/arm flare that I think is attributable to cervical/thoracic outlet/brachial plexus injury as opposed to a more systemic process, though I am undertaking investigations to see if this can be confirmed.

Hi Glenn

I have had an MRI on my spine with and w/o contrast and everything looked fine...also I had a lumbar puncture with the results showing nothing out of the ordinary. I do have soar neck muscles on occasion but it seems like that skeletal/muscular issue is not the cause of my PN.

Hi Lisa Ann

I have had my B6 checked and it was not a concern for the doc and I do take a B12 and Benfotiamine regularly but no B6 as of right now. I am a good eater of whole foods and feel as though my nutrition is not a major cause or issue with my PN.

I did see my Neuro yesterday and he is convinced that it is still a sensory form of GBS and started me on 20mg of Prednisone for 4 weeks and has referred me to a diagnostic Neuro specialist at the CU medical center in Denver where I live. I see her at the end of the month.

He did say my EMG showed enough damage that if the other neuro agrees I may be a candidate for IVIG. But he said the insurance company would be the biggest hurdle in that quest.

Anyway...thanks for your posts...I'll keep everyone informed as to my continuing journey with this challenge.