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Old 05-12-2016, 07:57 PM #11
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According to my quicky research (accomplished during this post, LOL), Dr. Harrison is a physiatrist at Cornell, and might well be worth consulting--I do like physiatrists generally, as they usually come from a multisystem, interdisciplinary approach. So thanks for that, SylvieM--definitely worth a call.[/QUOTE]

Hey Glenn,

Just returning the favor (Glenn referred me to my latest neurologist). Harrison is also a dynamite acupuncturist, studied it at UCLA.
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Old 05-14-2016, 05:37 AM #12
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Default Have left a message for Harrison--

--as well as a couple of surgeons at Cornell and one at NYU that had been recommended to me by a choir-mate of my wife's (who has had two good cervical operations done by the guy).

Of course, they all want records and images sent--but that's easier nowadays with electronic media; I just have to get a copy of the images for the NYU doctor.

Regarding the Lyme disease possibility--I did go through the ELISA, Western Blot, and eventually Igenex testing back in 2003 and nothing suspicious for Lyme or other tick borne diseases ever showed. Of course, we do suspect in a molecular mimicry autoimmune process that there was an infectious prodrome, but it could have been anything from a bacterium to a common virus--the key, presumably, is that it would have to have a chemical composition and shape similar to that of my small fiber nerves to result in my immune system to continue to attack.
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Old 05-15-2016, 09:14 AM #13
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I too have severe deterioration of my cervical spine, which was first found 28 years ago and has steadily worsened.

My neurologist has conducted Electrical conduction and muscle tests of my arms and hands. He found a 'non responsive' area in my cervical spine, but no nerve damage in my arms and hands. This was two years ago.

If or when there were nerve damage in my arms or hands I would consider surgery, otherwise I rely on Aleve, Gabapentin and prednisone to reduce inflammation and nerve pain.

I have small fiber neuropathy in my face, lips and tongue which at first my Neurologist thought might be caused by nerve compression in my cervical spine. But it isn't.

Trial and error and false leads to dead ends are frustrating. But this is part of having chronic conditions and complex conditions.

Our support groups are life lines for us.

Hugs, ElaineD
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Old 06-05-2016, 04:45 AM #14
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Quote:
Originally Posted by glenntaj View Post
--and the longstanding degenerative disc disease and osteophytic complexes I have from C3 all the way to C7 have progressed, with particularly severe foraminal narrowing at C5/C6 (C6 nerve root) and C6/C7 (C7 nerve root). There is also now moderate central canal stenosis at those levels.

This is certainly consistent with my current burning hand, arm, chest, and shoulder/scapular symptoms, which you may remember started March 15th after a weightlifting session went awry--although we still don't know why I have facial symptoms as well. Hyperesthesia--the delayed overreaction of pain nerves to generally non-painful stimuli--IS a hall mark of compression of the spinal dorsal root ganglia, which I apparently have, but it can also occur in more peripheral conditions, and given my unusual history--a full body acute onset small fiber burning neuropathy on April 11 2013 (happened in hours), with eventual healing and re-enervation, though probably in patterns that are different than they were prior to the onset-- I wonder if some sort of double crush phenomenon is going on. Moreover, I suspect that given my unusual history that my dermatomal sensory distribution is far from the classic map at this point (perhaps the C3/C4 nerves account for more of my facial symptoms).

There doesn't seem to be frank cord compression (yet)--though I wonder if it happens it certain positions, which could explain the more widespread, outside-the-dermatome symptoms (after all, the MRI was done reclining). I don't have L'hermitte's sign--the electric shock down the spine upon chin flexion to chest.

I'm being seen by my old crew at Cornell, but beyond the gabapentin have not been recommended anything beyond physical therapy and the cervical strengthening exercises, which I am quite familiar with and have been doing. But given lack of improvement in almost two months, I'm wondering if it's time to schedule a surgical consult.
Hi Glen,
I have some of the same spinal symptoms and I have had pain in left shoulder and in my arm and hand. I've had it on and off for years. I have a powerful dog and when he pulls me I start getting the pain in my neck going down to arm. I take voltaren and I also use magnesium oil on my neck as tight muscles are always involved and also heat. Once I must have had a motor nerve compressed as I felt for like 15 minutes that my hand seemed foreign. That was 5 years ago and only happened that once. I saw a neurosurgeon in Sydney and he said no surgery was warranted for pain only motor function issues. The worst for me is c5/6. Pain in your chest may be from thoracic spine.
If you remember I had a lot of facial pain at one stage and that went away too. I personally think that once you get PN with body wide symptoms though the nerves may heal other things may disturb them in the future such as foods, meds, glucose, viruses,thyroid, hormones and injuries. They are just never actually normal again. But given enough time there could be healing. Sometimes it has taken many months but I have improved from spinal issues. Best of luck if you see a specialist.
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Old 06-05-2016, 06:10 AM #15
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Default Thanks for the input.

I'm still experiencing similar symptoms, though the severity changes considerably day to day or sometimes even hour to hour. Certain activities such as driving (which I have to do a lot of) and keyboarding (ditto) seem to ramp things up--not all the time, but often.

I did a consult with a well-respected spine neurosurgeon at Cornell who was pretty engaging as surgeons go. His biggest concern is that there is some slight weakness in some of the muscles of my right arm ennervated by the C6/C7 complex, and he did think there may be some brachial plexus issues compounding it. (He also reviewed all my previous small-fiber history.) He ordered both thoracic and lumbar MRI's to see what is going on there, though he does agree that my re-enervation post acute onset small fiber may have resulted in some weird reconnecting that doesn't correspond to most people's dermatomes; he said he's seen some C7 chest involvement in the past.

Bottom line--six weeks of intensive physical therapy with traction and then a follow-up to see if symptoms have improved; if not, and there is still weakness, a serious surgery discussion. And, of course, we'll see what the other MRI's show.
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Old 06-05-2016, 02:34 PM #16
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Just to add info on another possible cause for shoulder/arm pain: the MRI I mentioned in my earlier post showed that I have osteophytes (calcium nodules - associated with osteoarthritis) forming under my left AC joint which are pressing on the tendons.

They weren't visible on the x-ray but showed on the MRI - prior to the MRI consult I was convinced the pain and numbness were due to nerve entrapment in the brachial plexis area. However the numbness and muscle atrophy in the same hand has been attributed to the neuropathy.

Glenn - you mentioned cervical spine exercises for strengthening - do you by any chance have a link to any sites that show or list these exercises. Any advice would be much appreciated thanks.
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Old 06-06-2016, 07:28 AM #17
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Default Here are a few fairly comprehensive sites.

I do prefer ones that not only describe the exercises but also show pictures.

Neck Exercises for Neck Pain

Video Series: Exercises for Cervical Spine Degenerative Disc Disease - Learn 4 Neck Stretches and Exercises
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