Hello everyone,
It's been a while since I've posted. I check in every now and then to see how everyone is doing. I still seem to be stabilized to the point where I can function with breaks and restrictions in activity. I can do light housework if I pace myself. I can drive the kids around and run errands, cook meals, etc. Everything hurts and I do have flares during the day/night, but they usually pass and I'm left with a baseline of pain and neurological symptoms. It's not easy.

For those who know my story, know that my children are affected as well (thankfully not as severely as I). Our symptoms go back to about 2012. I have what I am desperately hoping is some good news! I took my little one to a rheumatologist. He looked at my blood work, diagnosis, her blood work, asked many questions, and was interested in the symptoms of the rest of the family. He said it must be genetic- sounds like environmental exposure. This is what I suspect and have had no curiosity or help from any doctors about my kids and how absurd this is. Anyway, because of this doctor, a scientist from Columbia is working on our case and putting together a team of specialists to analyze this situation. It will take a while, but they will have access to all of our files and then determine what genetic testing we need. I am thrilled to be finally getting someone to see this as one thing! It will take time for them to get all records transferred and get us in, but this is what I have been desperately trying for.

Now thats my news. How are all of you doing? Updates?