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Old 07-16-2007, 07:44 PM #21
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Rose,
I've linked you to the Sjogren's forum which has a membership of 800+and growing daily. And the Sjogren's forum is linked to the dryeyezone which is a dry eye forum and I can't even begin to guess how many members it has.

I like your forum too and I'm updating my links as you update the forum.

Billye

Last edited by Silverlady; 07-16-2007 at 08:02 PM.
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Old 07-16-2007, 09:36 PM #22
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Dear Billye,

Thank you. It's so thrilling when it helps someone.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 07-16-2007, 10:25 PM #23
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Quote:
Originally Posted by rose View Post
Dear Billye,

Thank you. It's so thrilling when it helps someone.

rose
Yes, that's how i feel about my site.



I'm glad you have a site now, too.
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Do you know the symptoms of low vitamin B12.... ?
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Old 07-16-2007, 10:43 PM #24
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Non-commercial and original. I find it more satisfying that way. I know what it feels like to have my work taken and put on someone else's commercial site without attribution. It happened to me.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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Old 07-16-2007, 11:18 PM #25
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Aw Rose....



I love my site, and




Now look how many sites there are that talk about fingernails and B12.

Some mention my site, but not all.

You know what I think about our sites?



It hurts my feelings when people make un-archialogical...
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Old 07-17-2007, 01:16 AM #26
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[QUOTE=rose;124420]Daniella,

So sad. Prevention of problems is discouraged. Of course, if you develop those problems then there are plenty of pharmaceuticals to take.

Regarding your B12 tests, I think I remember something about them. Wasn't the 2000 result after your getting B12 somehow but not stopping for a few days before the test? And wasn't the 1500 after having stopped a few days?

Forgive me if I am wrong.

rose[/QUO

Well when my b12 was 2000 I was taking b complex only my neuro at that time told me to stop. I then went to see a new neuro who I asked and she said I could take it along with the b12 so I have for a few months. Since then I have had my blood work tested 3 times and my b12 is 1500. Weird as taking more in. The doc now at the cleveland clinic told me to stop but right now I'm still taking it. Something I know is never right in my blood work. Thanks and I like your site too Rose. Have you ever thought of being a nutritionist or into herbal meds and recovery?
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Old 07-17-2007, 01:23 AM #27
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Really you all are amazing with your sites and info. Really how it helps is an understatement. I often feel docs talk in a different language and many of you offer so much knowledge with compassion. THANK YOU!!!!
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Old 07-17-2007, 01:31 AM #28
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thank you, Daniella --

I put a lot of time into my site over the years, and I feel all warm and happy when it helps someone.

As an aside, the doctor who gave me the prescription for a B12 shot a day for a year is a ... holistic doctor. She tries to keep her patients at or above 1200 for B12...

I'm sure mine is way above that.

I have a really good article on my site about B12 test levels. It's my most favorite article:
http://www.health-boundaries-bite.co...B12-Level.html
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Old 07-17-2007, 05:01 AM #29
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Karen--that is a great website, I have saved it for reading later today. So much of it is making sense to me. I know I have an absorption problem, I have for years. I take a sublingual liquid B-Complex daily, which gives me 2400mcg of B12 and still, I have the ridged fingernails, the missing half moons, the brown spots on my hands, maybe even my arms, memory loss, confusion--so much makes sense.

Can I ask a silly question? Do some of us freckle with age? I used to tease my sister and my daughter so much about their freckles. I used to tease them that I could use a marker and play dot to dot games with their freckles and not, I see I am just as freckled as they are--all over, just like them, I never was before. Not so much my legs, but my face, neck, and arms are covered with freckles now--maybe it's paybacks for teasing!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 07-17-2007, 09:32 AM #30
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Daniella,

You would have absorbed plenty from your regular B complex if you malabsorb only from food. It is entirely reasonable under those circumstances that you would have tested 2000 without stopping for days prior to test samples being drawn.

If you then stopped (as I believe you said you did) for days prior to the other tests, the 1500 results are providing a clue as to how your B12 stores were at the time. The 2000 also measured what was running around in your blood and would never be absorbed or used.

rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

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