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Old 07-19-2007, 09:15 PM #4
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Monical...I believe your doc is right?

But, HOW WELL you get treated is going to depend totally on how HONEST you are to him about how you feel! As you have read in prior posts, describing pain[s], is often a very difficult and diverse THING.

As for the 'different' sensations one feels after an IVIG, well, I can say that I DO feel things differently in the before/after way I FEEL.. But explaining it all is well, hard, very very hard!

From all that I've read, and learned, there is a LOT of research about HOW nerves die, why they do so and what all happens during the process. There's a teeny bit about HOW NERVES REGROW! Most is related to spinal damaged nerve regeneration...nothing about those 'pesky' peripheral nerves... Based on all I have read, the 'assumptions' are that the 'nerves' re-grow but in some reverse process? But, my experience is that what re-growth is not as consistent nor diagramitically progressive as one would wish? That all MEANS: YOU are gonna get various and random zeeps, zaps, pains and spasms as your new nerves finally grow, connect and try to 'learn' WHAT AM I SUPPOSED TO DO?????? Thru all this, YOU the person with all these 'peculiar' 'sensations' has to say to the REST of YOU, UM BODY, CHILL? Then, worse yet, you have to keep up with exercise, and walking and pretending to do 'normal' things to keep the new or re-programming...in program mode.
OH, Did I mention the fact that ONE shouldn't PANIC during such 'episodes'?
OK about the supplements - be they vitamin or mineral.....your system overall has been well COMPROMISED. By providing the better/best vitamin, mineral and diet environment one could possibly have...it makes sense to help your body and your entire system heal thru giving it all the better stuff it needs...You have had some kind of assault [internally] to your body, so IF you can give it as much help as you can [and cheaply] aside from diet, do it...What can it hurt?
I too have/am going thru a thyroid 'issue/condition' diagnosis process...What's been helping me has been the supplements...so far.. We shall see for the longer run of things.
Just don't panic, look at all that's going on with you and try, ask about possible solutions. Some folks' solutions may not be what you need, but being INFORMED is what you need to be to ASK the docs the rite questions to GET what YOU NEED done! It takes lots of work for you to find your own combination of possible solutions.. I'm there for you tho.. [even tho my own situation is probably different {very} from yours]...I can probably point you to sites that may help you make up your mind about different issues. 's - j
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