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Old 11-19-2017, 05:11 PM #16
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
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Originally Posted by en bloc View Post
If they are doing a trial, then they obviously know the benefits!! Maybe even if you can't get on this trial, it will still open doors for you down the road with their results of the trial. Stay in contact with them about the trial...so you have any info about the results, etc.
I did look into it but I think they are looking for people with demylenating autoimmune neuropathies. Hoping I’m wrong.

I’m starting to wonder if mine is progressing to my large nerve fibres now because of a different non painful parasthesia in both arms from shoulder to finger tips. It just doesn’t feel the same as previous experiences of SFN. I posted here but no replies yet!
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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