Send you heaps of spare strength and electronic hugs to help you thru this.
Just don't panic please - at least, not YET?

As my fav fortune cookie says: Patience is the Art of Hoping! We all can do that well, and the old-timers here have learned that well. May some spread over to you! - j

Just a bit if FYI.

I have done some edits on the posts. I have not changed any information, just removed the name of kmeb's ltd insurerer for her privacy and changed where her first name was used to her username.

Any questions, feel free to ask on the thread or pm me.

Curious

Just got back from a short visit with my 91 yr. old Aunt and my brother,
who came down from Mi.,haven't seen him in 4 yrs.,think my Aunt told
him i dying to get him to Hannibal Mo. And Kmeb holy cow..I want you to
know i've been through the same thing lately,and it scares the h-ll out
of you.....My biggesst fear and i'm serious,is to be on the street in my
wheelchair with a Gucci bag,is that how you spell it Mel. ..I can't sleep
because of the threats of Dissability people...Well no that's wrong,it's
staff and nitwit Drs.

Mel every state is different,that's why my children,who will have to get
over it,won't talk to me...I can't move by them,because it's 2 easy to lose
everything. A whole new set of Dr.s it would just wear me out...


So God love you Kmeb you have to be terrified,so slow down,(i hate when
people say this to ME)...Stay with us because i'm selfish and i need you
and you need us. You love where you are,Bob grew up there and spent
most of his life there,now he said he could never go back,wear's you out.
But he said it has good hospitals,and he worked in one for 27 yrs.
There'.s one thing i have is a house it's in Columbia,Mo. if you ever need a
home,just let me know...Well ok it's my kids home,but my rearend is in it.
And believe or not Bob has to drink ensure in between small meals.
Karen we will all be ok honey,won't we,well somebody say YES,your family
is here. Hugs,prays and anything else i'm to tired to think of..

I think we need that commune and now..... Sue

Dear Forum Members,

To protect kmeb's privacy, please do not post her first name. This is her wishes.

Thank you,
Curious

I should know that...Shiney for a oh shoot it won't work...Sue

Hi! I think I answered part of this in another thread. But in case you didn't see it and because it's partly pertinent to this topic....

My long term disability insurance company ignored my positive lip biopsy and positive nerve conduction tests. They instead decided I was mentally ill (which is absolutely untrue) and decided to cover me for two years only. They have known for a year that I would fight their bogus diagnosis and would fight any cessation of my benefits.

I think most of the time, if your benefits are wrongfully terminated, you will end up negotiating for a settlement. And in some ways, it's a relief for the claimant because you no longer have to waste precious energy that you don't have just to prove over and over that you are still too sick to work. The downside is of course that the amount that is offered is far less than what you would have gotten had you continued to be paid up to retirement age.

kmeb, that's HORRIBLE what happened to you during the endoscopy! I hope those responsible pay up. It's awful that you'll have to undergo dental work for damage that never should have happened.

But thanks for mentioning it. I had no idea that sort of thing could happen! My teeth are already crumbling due to the Sjogren's, so I will be on the alert should I ever need another endoscopy.

shiney sue, I understand the issue of not wanting to move and find all new docs. I had to move to South Dakota in November from Denver because my husband got laid off and my disability checks just don't go as far in Colorado. I cannot find a rheumatologist here who will even acknowledge the existence of sero-negative Sjogren's, much less support a disability claim (I'm now trying to find someone in Omaha, Minneapolis or the Mayo Clinic).

Best wishes to you, kmeb. There are a lot of people pulling for you here.

fanfaire

Fanfaire,
Your diagnosis of sero-negative Sjogren's should be a snap to get at Mayo Clinic. I was diagnosed with sero-negative Sjogren's and sero-negative spondylarthropathy as well, by Dr. Michelle Mauerman and the doctors she referred me to within the Mayo Clinic in Rochester, Minn.

There is also a Mayo in Arizona. Dr. Mauerman may be able to refer you to someone at that branch.

Silverlady

Kmeb - My thoughts and prayers are with you for a favourable decision. If anyone deserves it, you do. Justice will I am sure prevail.

Tony

Kmeb,
We are all holding our breath. Please let us know what happens. Good luck.

Silverlady

((((((((kmeb)))))))

I hope it works out.

I'm trying to handle something similar... but different. And it just is so frustrating and energy sapping.

I couldn't sleep for a week... (I don't count three hours in 24 as "sleep" .. it's more of a tease)

I sure hope it works out for you.