My symptoms started in Jan 2011. Numbness, weakness, balance gone, falling down both legs to mid calf and fingertips both hands. My neurologist made dx and sent me to Mt Sinai New York for second opinion after I failed the emg test. He said Rituxin no plasmaphoresis no IVG. In September 2011 I had the 4 doses a week apart tolerated well. With 6 months of treatment hands fine. Only numbness in both feet below ankles. No pain no balance problems or weakness. I travel, walk, drive and go to my neurologist every 6 months. The minute if I start to have progression of symptoms I will call him and have Rituxin again. The choice is being wheelchair bound. I do exercise. If you don't use it you lose it. No other meds were given. No steroids. I don't know how long this remission will last but I am enjoying every day. Dx age 65 now 68. The key to the treatment working is to have it done as soon as you can.

Can't Find the Right Dr
 

Didn't mean to take so long to answer NancyKay. Been busy with shoulder surgery, PT, pain clinic visits, applying for SSDI, etc. etc. I hope you are doing well as you can. My visit to the rheumy at Vanderbilt last spring was very disappointing. Nice guy and all but he wanted to blame ALL of my symptoms on fibro. Totally disregarded any previous test results. I give up on finding a Rheumatologist for myself, but found one for my son who is treating him for pain due to some kind of connective tissue problem.

I did get referred to another local Neurologist for arm pain. I'll take the anti-MAG and other previous test results, but I expect he'll just blow all that off like everyone else has so far. Guess I'm resigned to living with getting gradually worse. I don't have the energy or fortitude to keep looking for a doctor that knows about anti-MAG and/or is interested in investigating.

I hope you were able to get insurance to cover your treatments and that they have helped you feel better.

Congratulations on your remission with Rituxan! I had hoped for the same but found no effect. I am currently back on IVIg for 2 consecutive days every three weeks. I am also exercising 3-4 days/week doing water aerobics/Zumba/Palates/etc. at a club to strengthen my core and legs in order to preserve my ability to walk and improve balance for as long as possible. Granted, I'm surely not at the top of these classes, but I am trying. I do these classes in the mornings as I find that I am too tired to do much later in the day. Insurance is paying for my IVIg treatments thankfully! I am feeling pretty good. I feel that the exercise also benefits my mood as depression has been a problem while I have had anti-MAG. I am also taking Cymbalta, which helps. Intention tremor of my hands has continued to be a problem that does not allow me to work. I see a hematologist/oncologist every 6 months-1 year as I have abnormal levels of M paraprotein that can get high enough over time to become a condition called Waldenstrom's Macroglobulinemia which needs to be treated. My uncle died of this at the age of 49. I hope you are continuing to do well.
Blessings,
NancyKay

I have been diagnosed with anti-mag antibody about 1 year and 1/2 ago after 9 months of dr appt and tests. I went as long as I could With out pain meds but it got to the point that I couldn't stand anymore, felt like I was walking barefoot on hot sharp pebbles, I am currently taking nortriptyline used for nerve pain, it has helped tremendously I can get by day to day, im still limited if I over do it which before this was considered normal for me I am in pain by evening and usually the next day. But I do not think I would be walking with out it. I am being treated with rituxan, I do not know if it is helping or not. My numbers are up and down. Im on maintenance every 2 months, in November they dropped significantly, today they tripled from November. Dont understand. Other then nortriptyline helping the pain I dont feel anybetter. Do not know what future hold or what to expect by the treatment of rituxan long term. I just get told its so rare no text book way of treating it or knowing what causes it :/ :confused:

Welcome mima. :Tip-Hat:

Hi Mima,
There are a number of us with anti-MAG. I've had it for about 13 years (now 59 years old) and have had both Rituxan and IVIg infusions. I did not benefit from Rituxan unfortunately and am finding IVIg and exercise to keep my core and legs strong to be of most benefit. I have balance problems, hand tremors, burning feet (if I walk very far), have severe restless legs syndrome. Thankfully, as long as I don't get too warm or walk too far, I don't really have much discomfort. I take Mirapex for restless legs which really helps. I have been seeing a very good neurologist at Virginia Mason in Seattle, WA. Glad to live in a cooler climate! Hope you find that the Rituxan is helpful. Keep in touch and let us know how you are doing.
Blessings,
NancyKay

Anti-MAG
 

Hi Everybody. Thought I would update on my progression and medical advice. I am 61 and was diagnosed with Anti-MAG polyneuropathy in May 2014. My titre count was over 70,000. My doctor wanted me to start treatments immediately. She and I both did research online and discovered that the counts do not dictate whether to treat, but rather the effect on your life, ie muscle strength, balance, etc. in the Midwest Washington University in St. Louis is one of the prime treaters of anti-mag polyneuropathy and they also do clinical trials there. I sent all my records to them and made an appointment for July 2014. Prior to getting my appointment I read two books dealing with the role foods play in auto immune diseases. The books were The Paleo Principle and The Wahl Protocol, both believing that food affects our health a great deal. Anyway I decided to try changing my eating habits and started following a modified Paleo diet. that was in late May 2014. I gave up all dairy and grains, along with all processed foods, sugars, etc. I do not eat anything out a box or can, etc. I splurge on grass fed beef, free range chicken etc. When I went to Wash U they repeated my nerve conduction tests and did my blood tests over. My initial count with neurologist in Naperville, IL was over 100,000. At Washington university They do the IGM count a little differently as they use a different scale. My count in there measurement was over 260,000. However, my muscle strength in both feet legs and arms were good. My neurologist said if Anti-MAG progressed to affect my lifestyle then they would want to treat me with Rixataub (spelling). He told me to come back in 6 months and they would check my gait, muscle strength again. So fast forward to December 15, 2014, my second appointment. Luckily for me my gait still steady, muscle strength same. Doc said he would like to do blood tests over but kind of expensive. I said go ahead as I had changed my appointment from January 2015 to December 2014 because I had already met my deductible. Doctor said call in three weeks for blood test results as lab running behind. Dr. Left message that the my bad titre count was down to 6000 from 260,000 on their scale. He sounded pretty amazed. Now I do not know the reason, but I firmly believe that following a modified Paleo has helped. My feet still suck and I always feel like I am walking on pebbles, but no muscle weakness.
As a side note to Steve in Chicago I know about you and I agree with your observations. I forgot who mentioned shingles, but I am convinced that my shingles vaccination was the trigger for my Anti-MAG. I agree there has to be an anomaly in your physiology, that standing alone would not bring on the neuropathy, but add 60 years of processed foods and then the live virus vaccine and boom three weeks later neuropathy sets in.
I know this is long, but because I feel like the diet change has helped me maybe it will help others. I will update everyone as I progress, or hopefully remain as is!

High anti mag titer treatment
 

Hi. I was diagnosed with this disease in 2005. I was told it was an old person's disease and my labs were way off the charts. I could hardly move my legs and arms. I am being treated at OHSU with rituxen infusions every 12-18 months. My results have been excellent. I have returned to near normal but can tell when I need an infusion because I begin to get tired. Of course I have the tingling if I have weight on my arms and over time, the tips of my fingers and the bottoms of my feet are less receptive to touch. But when I was first diagnosed, I couldn't even type, or even hold a pencil. For the most part, exercise really helps and so do massages. Lots and lots of massages. My disease is being well managed.

Welcome epfoster2. :Wave-Hello:

Anti MAG neuropathy
 

I was diagnosed with Anti MAG neuropathy in February by Norman Latov in NY after being unsuccessfully treated with IVIG for what my original neurologist thought was CIDP. I have had one round of Rituxan that finished in April and feel that it is no better, possibly worse.

We think mine started 8-9 years ago and first showed up as what was diagnosed at the time as Bells Palsy, with left side of face effected and never recovered. Have worsening numbness, tingling and strange sensations in my feet. I walk 3-4 miles a day, still work as a nurse and play golf, walking 18 holes. My feet are definitely worse after walking but can't help but think staying in the best possible shape is advantageous.

Keep hoping for new research into treatments but so few people with it there seems to be no push for it.

Female anti-mag just under two years.
 

Hi! I live in the Chicago area and see a neurologist at Washington University in St. Louis. They treat Anti-mag. I have mostly sensory, no muscle. I have been seen 3 times. Mostly they check my balance and strength. Because I am not being affected yet in these area, I do not take anything. My feet hurt, but not bad enough for treatment. What does help when I can't sleep due to pain is lidocaine patch. I only use once every couple of weeks. Do not like ingested drugs, so no Lyrica for me. I was seen 6 months apart and now will go back in 9 months unless a change in balance or weakness etc. I swim and walk and do a lot of stairs. The doctors at Washington University Neuro-Science center are very knowledgable about Anti-Mag. They will not blow you off. Good luck,

Welcome Mamasucci. :Wave-Hello:

Thanks for your info mamasucci! Their website has some good information on neuromuscular diseases and I've wondered about their clinical care. Nice to hear from someone going there and that you recommend it. I'm in the southeast, so going there would probably be doable.

I haven't tried to find a new neurologist yet, but probably should. The only good one I've ever seen, who ordered the anti-MAG test, is retired. The last one I saw was referred by my ex-Rheumatologist for forearm pain. NCV testing showed carpel tunnel and that was that. Still so many unanswered questions.

Hope to hear how you are doing in the future and that you continue to function without resorting to medication.

Recently diagnosed with Anti-Mag. Three treatments of IVIG and no change. If treatment works, how long does it take? Has anyone been successfully treated?

Anti-mag
 

Hi,

I'm new to this forum. I've was recently diagnosed with Anti-Mag Polyneuropathy. My level of antimag is 48,045. I'll be seeing the hematologist next week to discuss treatment for pain in my hands and feet. I'm assuming they might suggest Rituximab or Imbruvica. Does anyone have a similar experience?

Thank you, I appreciate any input.

Hi Munger

Welcome to NeuroTalk :).

Recent evidence suggests that Rituximab is less effective than was initially thought in treatment of anti-MAG neuropathy Placebo-controlled trial of rituximab in IgM anti-myelin–associated glycoprotein neuropathy .

Imbruvica is usually used in treatment of some B cell cancers. Peripheral neuropathy is a known side-effect of this Imbruvica Side Effects in Detail - Drugs.com .

These things might be worth discussing with your haematologist.

Thank you so much, my anti-mag level is 48045. Is that considered high?

Probably what was done was to measure your anti-MAG antibody level using an immunoassay (an ELISA). The results are usually expressed in Buhlmann Titre Units (BTU).

BTU <1000 is negative, BTU between 1000-3000 is low positive and high positive is >70000 BTU. So, your results are in the positive range.

I saw the hematologist oncologist yesterday and have decided to proceed with the Rituxan infusions for four weeks.

I'll let you know how it goes, first one is Jan 5th

Well, my insurance won't pay for Rituxan so I'm waiting to hear about funding through the manuf. they won't pay for Imbruvica either.

Anti-mag and WM
 

I was diagnosed last year with anti-mag and WM. I go to the Mayo Clinic and have had 2 rounds of Rituxin to treat my anti-mag symptoms. In addition to PN, it has caused high blood pressure and digestive problems as a result of mylen degeneration of nerves and muscles to vital organs. Rituxan therapy has been very good at reducing my numbers and symptoms but not long lasting. I am hopeful of some new targeted therapies in the future that will be more effective so I don't have to take Ibrutinib. Trying to put that off as long as possible. It took 12 years for someone to finally diagnose me. Very frustrating! But now I have great doctors at Mayo!

Hi Valcox

Welcome to NeuroTalk :).

It is good to read that you are getting excellent care.

Best wishes.

anti-mag
 

i have been diagnosed with AM as of lastv week. i have had symptoms for
the lst 5 years but none of my former doctors did not recpgnized it.

my neurologist is recommending Rituxin but i have some concerns about
side affects.

any suggestions appreciated.

Jim

Hi Jim

Welcome to NeuroTalk :).

This information about Rituxan might help you Rituxan Monograph for Professionals - Drugs.com .

Best wishes.

rituxan momograph
 

i read the document especially the warnings. pretty serious. need to talk to

my neuro again.

jim

Any Anti-MAG folk still there?
 

Hello,
I’ve just joined this forum because I’m looking for other people around the world who have been diagnosed with Anti-MAG Neuropathy.
I don’t know anyone else with this condition where I live in Australia, though I’m sure they exist, even if it is a rare disorder.
If you’d like to share your story with me, particularly about what has helped you improve and/or live with the symptoms of Anti-MAG, I would love to hear from you.
I was diagnosed 18 months ago, but have probably had it for over 10 years , firstly in a mild form, and originally diagnosed as neuropathy from a possible pinched spinal nerve. My symptoms accelerated about 3 years ago and I sought a re-diagnosis nearly 2 years ago. Since the diagnosis of Anti-MAG Neuropathy (my titre = >70,000) with IgM monoclonal gammopathy , I have been treated with Rituximab every 3 weeks x8, but it had no apparent effect. Three months after that I was started on IVIg Privigen 50g every 4 weeks. I have been on IVIg now for 9 months. After the first 2 treatments of IVIg, I noticed a significant improvement in symptoms and was able to start walking without the aid of a stick. Since then, my neuropathic symptoms have plateaued. They are no better, but also no worse. Fatigue and temperature control are still a huge problem though.
So.....are any of you who used to chat on this thread still out there? Or anyone else new to this forum?

Hi Skwiss, I am a 66 year old woman who lives in Australia. After a year of health investigations, six months ago I was finally given a diagnosis of anti-MAG PN. This condition developed quickly and is considered very rare particularly in women. I also have regular blood tests for monitoring the condition of MGUS, which is another health issue I have to deal with.
With the situation of COVID 19 and my auto immune disorder, I am waiting to hear from the hospital when I can start some treatment with Rituximab. I was very interested to hear your views on the various treatments you have followed. I am struggling with this condition as my quality of life has deteriorated drastically. My walk, balance are severely effected - thankfully I see my physio twice a week which helps me to manage. I do get bouts of depression and will be seeking guidance from a psychologist. I would like to hear more on how you managed this condition.

Hi Krysa,
It’s lovely to hear from a fellow Aussie! I’m under the care of a haematologist and neurologist in Melbourne. They both acknowledge that there is not a lot of experience in this country with Anti-MAG PN and I’ve found medical journal articles online that they hadn’t ever seen! So I feel as if we’re all trying to find a way forward together.

Initially, my haematologist wanted me to have a cocktail of Cyclophosphamide, Rituximab and Dexamethasone. At the last minute my neurologist changed it to Rituximab only as there usually worse side effects with the cytotoxic drug. However I still reacted to Rituximab, with several days of fevers and chills and then fatigue for two weeks. I only had one week out of three when I felt I had any energy.

At that stage I needed a stick to leave the house and couldn’t walk easily in the dark. Eighteen months ago I also had a sural nerve biopsy during the diagnostic stage. That has added to the numbness in my left foot and still causes constant pain.

In terms of management, I’m thankful that I have an extremely helpful husband and who drives me wherever I need to go. It has been very hard to have to give up driving, as is required legally for people diagnosed with PN. Before COVID-19 I was about to apply to be medically tested to regain my licence. I applied for a government health care plan, but didn’t get to start with a nutritionist or exercise therapist before COVID restrictions started. I support my legs and arms with extra pillows and sometimes a bed cradle at night to help with the pain. I tried Pregabalin (Lyrica) for a while, but it didn’t help and I try to limit my use of medications anyway.

The other significant help in facing my health problems has been my Christian faith and the support of friends across the world who pray for me.

What helps you??

Hi Krysa and Skwiss

Welcome to NeuroTalk :). I hope that the Covid-19 restrictions will allow you both the get the professional help that you are looking for.

This fairly general information about anti-MAG neuropathy may help both of you.

Anti-MAG Peripheral Neuropathy - GBS/CIDP Foundation International.

Best wishes.

Thanks Kiwi33,

Over the past 18 months I’ve tried to read everything about Anti-MAG PN that I can get access to! Your article from the GBS/CIDP Foundation was one of the first that I ever read.

There are different views on effective treatments. Most people agree that more research needs to be done but, as with most rare disorders, it is difficult to get the necessary funding.

I’m thankful that in Australia we do have access to government funded treatments and can try different options without suffering financially. And, so far, COVID-19 has not prevented me from continuing treatment in hospital.

I was diagnosed with anti-MAG about six years ago. Initially, my symptoms – numbness and pain in my feet – we're not a big deal, but things have progressed to a point where now my balance is gradually worsening, and I have sensory and motor issues in my hands. I've had IVIG and plasma exchange treatments, both with no side effects, but neither offered any improvement. Pain is managed nicely with Lyrica and Cymbalta. I'm scheduled to see my neurologist, and I'm sure Rituxan will be in the discussion. I'm inclined to try it, thinking it's the only thing that seems to offer some potential, but I am cognizant of the side effects, and the risk with Covid out there. I am 72 years old, in general great health, exercise frequently, and think I eat pretty well. All this said, I'm wondering if I'm missing something. Could diet change and/or supplements be worthy of consideration? What else? At some point, it's a matter of accepting and adapting, and just moving on with what I've been dealt. So, I would appreciate others thoughts on: anecdotal stories of rituximab – successes, side effects, risks with Covid, long-term treatment issues, etc.; anybody with experience with specialized diets – 525 protocol, Dr. Terry Wahl diet (I learned of these two diet plans from my participation in the mayo clinic chat group – check it out).

There doesn't seem to be a lot of recent posts to this forum thread. Am I missing something? Thanks a lot.

Hi to all!

I have read some of your comments and questions, concerns about the IgM MAG. I am currently age 68 first diagnosed in 2005 so I have had a long time to experience this condition. It took a long time to get diagnosed but finally a neurologist did at Mass Gen in Boston. It started out with just the tingling, in feet and the arm tremors. Some "ticks" (uncontrolled jerking) but these have gone away. Mass Gen immediately started me on a 24 regimen of Rituximab but this did not work, no relief. Apparently 50% do not. My neurologist at Mass Gen tells me there is nothing more they can do.

I want to tell all that this is a slow acting condition. Sometimes a year or two will go by and I think nothing has happened when it has. I use "benchmark" physical activities like simply climbing stairs in my house and seeing the difference over 6 months. Then again, I believe I have "attacks" of the antibody not realizing this has happened until after the fact and my condition has worsened.

At this point I have had this disease now 17 years. I can still walk, but not run. Tingling in my legs all the time, both and the arms hands just starting. Pain in my feet all the time. I have gotten use to it. The Mass Gen neurologist says my "balancing issues" caused by my feet condition since the sensory response to my brain for balancing is through my feet. Otherwise I am ok, no other medical issues I am aware of except maybe my heart. I have had one heart attack but it maybe unrelated. High BP too under control with meds

I get "out of breath" very easily with simple activities but usually from something new I am doing. I have been tested for heart problems, "stress tests" all normal. But blood tests indicate that it is all muscular with the loss of function. The strength is my legs is almost not there due to atrophy I believe

My suggestion? Keep moving! I currently I go to the gym (planet fitness) twice weekly and workout vigorously. I also play golf weekly (here in Maine when there is no snow on the ground!) which I walk all nine holes. I also take Tae Kwon Do (not an advanced green belt) which is also very vigorous. I think these physical activities are doing a lot! Otherwise I modify my activities where necessary (light on going to bed as the darkness causes me to fall).'

By exercising my legs whenever I can, I keep those muscles that I can still use in good condition as much as possible. Strengthening them at the gym, legs doing a lot. TKD provides a totally different exercise pattern.

I hope this is helpful. Hang in there and do no let it get you down emotionally.

Maine Genie

I have IgM MAG too!
 

Hi, I have been diagnosed with IgM MAG autoimmune as well. I live in Maine and it took several years to diagnosed ultimately at Mass Gen H in Boston. I am currently a week shy of my 69th birthday but I was diagnosed, typical with the disease at age 50. Yes, tingling first in feet, then legs, then "ticks" that disappeared. At first my balancing was ok but as you know the progression is very slow even for me to see differences. I use "bench markers" of physical effort to detect changes including just stairs in my house, walking up hills in the neighborhood. Currently my feet and legs well past "tingling", now numb, cold feeling. Since the bottom on the feet are where our balancing comes from, that too is now more significant especially at night without light as with going to bed. I get out of breath easily but only doing different movements since those muscles now no longer work (the nerve fibers going to them not working). I was treated initially with Rituximab infusions but apparently I am one of the 50% it does not help. My neurologist at MGH says nothing more they can do for me. So I exercise at the gym, 2x per week, vigorously with weights and aerobic. I also walk the golf course during the summer playing nine holes weekly and I take Tae Kwon Do classes also 2x week, also vigorous physical effort. All of these things seem to help including my overall health. But I have had two unexplained heart attacks or cardiac arrest in the past ten years. I have never smoked and work out as you see, no weight issues. I have told my cardiologist that the Igm MAG protein could be the reason but no response. Since few medical are familiar with this condition, I get a lot of stares of confusion from the MD. My arms and hands beginning to become affected now but I still work and use the computer but it is hard to sign my name. Yes the progression is slow. I do have "attacks" at times after which I see difference especially more now with my age. But I do not realize it until latter. I hope this is helpful. You will be ok if you take care of yourself. Maine Genie, Steve

Anti-MAG hit me like a freight train.
 

Hi. My case is very different from everyone I have seen here. Anti-MAG hit me like a freight train.

In early March 2023, at age 68, my fingers went numb. I asked Google about numb fingers and it came up with “carpel tunnel”. I thought, “what a pain”, but it didn’t sound like an emergency. The next week I noticed extreme exhaustion. I went to bed an hour early each night feeling like I’d just run a marathon, even though I’d only spent the day on my PC. And I had night sweats. I would wake up sopping wet. I thought, “maybe some kind of flu”, and I waited for it to pass. The third week was the shocker. I finally got up from my computer to prune the fruit trees (late as usual). It was bizarre. I felt like I was wearing a 100 lb. lead suit. Every movement was incredibly difficult. I could barely hold my little electric chainsaw. I panicked. My mind went immediately to MS which my sister has. She is now in a wheelchair.

I called my Dr. the first of April. He ran some tests. It took a month to get a Neurology referral from him. The first of May, I talked to the Neurology office. Their first available appointment was not till sometime in July. My heart sank. But a friend told me about GBS. That sounded a lot better than MS, so In the absence of any other information, that is what I focused on.

In May I could still walk, drive, go to the food store etc. But it was getting harder. I would park next to the cart bin, then hold on to the car or bin till I could grab a shopping cart to hold on to. Later in the month, I started having falls. If my foot would unexpectedly catch the edge of a carpet or an uneven sidewalk, I no longer had the reflexes to recover, and I would go down.

By mid-June I could not walk at all without a walker and I felt none to steady with that either. For anything over 100’ I had someone push me in a transport chair. I no longer felt safe coming down the stairs from the bedroom, so I did it on my butt. Later PT got braces for my shoes to steady my leg and they showed me how to do the stairs sideways, one step at a time, facing and holding the rail with both hands. But I only did that for Dr. appointments. So, I’m pretty much confined to my bedroom now. I slide from my bed into my computer chair in time to eat breakfast at my computer desk where I sit till after dinner, when I slide back to my bed. My fingers were so weak and uncoordinated that I could no longer operate a standard nail clipper or open a bag of potato chips. I lost hearing in my right ear. My bowels stopped working – I stopped pooping. I had to take stool softeners twice a day. I had terrible gas pains and felt bloated. My feet were swollen. I bought compression socks but was totally unable to put them on. At night my legs ached from my butt to my feet.

All this time I’d had a pretty good attitude, thinking that GBS/CIDP is treatable and completely reversible. I’d soon be back to hiking, backpacking, and cross-country skiing in the Colorado mountains. (I had some GREAT trips in 2022). This was just a bump in the road and just the chance I’d been looking for to step back and catch up on a mountain of reading and various computer projects.

My attitude abruptly changed in July. I finally met with my neurologist. After a nerve conduction study, a spinal tap, MRI scans, and endless blood tests (at least 24 tubes), by the end of July I finally had a diagnosis – anti-MAG. And the prognosis for that did not look nearly s rosey. My Dr said in 4 and a half years he’d only seen one other case. I asked how that patient did, but did not get a clear answer. I continued to deteriorate.

Mid August – I’m scheduled for my first round of rituximab next week, but after reading the studies I’m not particularly impressed with its effectiveness. My arms and fingers have reached a new level of numbness. I can no longer really type, only hunt and peck. The muscles in my arms and legs are now incredibly tight and hard to stretch. I am now closing out all my open projects as best as I can, looking for others to pass on my volunteer duties to, gathering up all my financial papers and notes for my wife, and I think it is time to register my DNR orders.

Given my rapid progression, I have to wonder what triggered it. I hope it wasn’t my UV exposure. A week before this started, I was setting up my fluorescent mineral display at our rock show. I was using our new 195-watt UV-C lamp. (UV-C is right next to X-ray on the electromagnetic spectrum). A couple of times my hands got so close to the lamp, it felt like they were being cooked from the inside. It was a strange sensation. Of course, my wife blames it all (blames everything) on the Covid vaccine (which she refused to get).

Hello all,

I recently tested positive for ANTI-MAG antibodies. I did not do an ELISA test, but an antibodies in blood test. My result was 46ng/ml with reference range of 0-3, so way way out of range. I am only 43 years old and have been suffering through 10 months of whole body neuropathy thought to be caused by covid.

I do have spasms in my left leg in addition to the loss of sensation on all skin and in my gums too. Could be early symptoms.

I will try to do an ELISA test if one is available, as soon as possible

Yes, I have been diagnosed with Anti Mag peripheral neuropathy. It started in 2017, but I wasn't diagnosed until 2023.