Quote:
Originally Posted by EDELSTEP
Hi,
I just found all of you. I have peripheral neuropathy with numbness and gait weakness from toes to mid calf. I had MRI negative,electric nerve test (failed) and today my neurologist called and said I have Anti Mag Neuropathy and referred me to Dr David Simpson professor of Neurology who specializes in autoimmune neuropathy at Mount Sinai in New York City. I have an appointment Jan. 13, From what I am reading on this forum nothing really works as a cure. I don't have a problem with plasmaphoresis but chemotherapy is scary when they don't know the long range effects of some of these drugs. Many of you swear that Rituxan therapy has worked. Will insurance pay for this? $20,000 a dose seems overwhelming. Any improvement on holistic therapies like Lecithin and B12 or fish oils? Please reply...very confused but glad I am not alone.
Edelstep
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Hello, Edelstep. After a couple of false starts, the nuro dept was able to get my treatments mostly covered. I believe it was coded as chemo therapy -- perhaps the secret is how your dr. or hospital codes it. Wish I could be of more help -- but the hospital didn't explain and I didn't ask. Good luck. NancyW
01-03-2011, 09:23 PM
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