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Old 09-14-2007, 05:54 PM #11
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We can only hope that the psych who implied that your pain was a psych problem will someday be inflicted with a pain disorder..... Surely ther is a special place in hell for doctors who dismiss pain symptoms in this manner.
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Old 09-14-2007, 08:10 PM #12
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Default Daniella, I believe

that you are not only coping well, but far beyond well! You are learning your limits and at the same time pushing your own envelope out to a bigger shape! And you are being very adventurous in pushing it to a possible move even... Far more adventurous than me in reality...so keep it up.

As for pain clinics? That first one being 'wary' of folks who have emotional issues sounds short-sighted to me. Why because their track record of claimed 'success rates' eliminates the very people who need the help the most. That is undermining their fundamental mission statement as a non-profit...in my book...and all subsequent research and results will be faulted. I mean, who doesn't have 'emotional issues' with the pain we have? DUH?

Try another one? Worth a shot any how? You just might find a place that has a method or philosophy that works for you....each of these places have one, or many...it's like finding shoes that FIT tho...there are lots of variables for us with all our problems. I had found a PT place that was working for me, then they changed corporation mangagements and staff changed...wasn't as effective nor did it work so well. So on to a new search the next time I need it! [REALLY Hope I don't need?] Maybe the second or third try will be the 'charm'...we all need to keep up the hope that it can and DOES sometimes happen for the better.. There are some here, such as Brian and David who have and are succeeding...that they've not abandoned us is proof that some can recover AND care! - j

ps: Dakota is right - if that psych had a week with what we have to deal with -would be a total basket case for sure! We are stronger, better and smarter by the following of our own instincts...We do not conform to a model, because our disease/condition doesn't seem to! Therefore we have no choice but to be 'unconventional' in our own thinkings.
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Old 09-15-2007, 02:20 AM #13
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I am beginning to think a lot less of some of these pain clinics. One small clinic we have here is nothing at all like this. The clinic has a very kind sympathetic doc who does not play mind games with people... He just tries to find a way to help people... Sometimes, it takes one med, sometimes it may take a combination, but he just keeps on trying hoping to find something that works.

I am sure there may be some people he has not been able to help, but I have never heard anyone say he implies that it is in your mind, or that you have control over it or anything like that...

Perhaps the big universities are not always the way to go... I stumbled on this one by accident through a friend...

Cathie
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Old 09-16-2007, 02:38 PM #14
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Thanks again guys. I agree about the people on this forum are such great inspiration of hope. I will say many psychs and I know there are some good but many have issues of there own that are more then just the normal problems. When I went ip for mental issues many of the therapists were recovered addicts,etc. You think they would have more compassion. I think your right that you have to keep fighting through to more places for help. I wonder how you all deal with the unknown? Everyday since my symptoms like others have spread or go up and down so much I fear what will be next. Its so scary and makes me so confused on choices. Its so lonely being like this.
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Old 09-16-2007, 03:42 PM #15
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You need a hug.

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Old 09-16-2007, 03:54 PM #16
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Thanks. Many hugs to you too. I'm so confused and that meant a lot.
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Old 09-16-2007, 05:26 PM #17
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Maybe you need 2 hugs! Sometimes we are afraid too. Fear of the unknown is tough, plus the energy you waste trying to get a doctor to take you seriously is exhausting.

Oops. I don't know if I did a hug or not... Never tried it before. Hang in there and get some extra rest... At your age, you should be priming yourself to put on your bikini, go to the beach and have a couple of those cute drinks with parasols in them...

Cathie
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Old 09-16-2007, 06:17 PM #18
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"""At your age, you should be priming yourself to put on your bikini, go to the beach and have a couple of those cute drinks with parasols in them...""

And with guys, Cathie. Don't forget the cute guys!!!!

Daniella, I can see you on a beach with a cutie pie.
Throwing sand in his underwear!!!!!

Hey, you never know!!!

mel
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Old 09-16-2007, 07:00 PM #19
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Hey no drinks with meds. You guys are so cute. Thanks for the lifter. I hope one day to be able to do care free things like that. I do have a cute bikini. I'm not a big swim suit fan but what the hell if I'm fixed anything goes. I can hope right. I won't be doing any dangerous jet sking though. You guys could come visit and party. You know I'm a worrier its my job which I hate. This of course is scary but I always can find something to stress on. I hate it and its eaiser said then done to not. On the doc note too I agree and they often make mistakes so that makes the worry of course worse. By the way did you watch 20/20 it was about insurance and docs how they treat and charge patients. Also how it takes forever to get mri or how some insurance won't pay. It was interesting. I know with my ed most has been out of pocket cause insurance would not help. These place too take advantage cause the centers cosy around 1500 a day and most you spend month or more. My friend stayed at one for 8 months. They gave her a dicount but still. Some peoples insurance does cover but still many don't just like here how some people have certain coverage but don't on other. Ok enough of my rant. Thanks
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Old 09-17-2007, 02:21 AM #20
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Nope. Missed the show, wish I had seen it...

Meanwhile, go to the beach, check out the guys, but watch out for sand crabs... Really... Once I came home from the beach after a long day of baking in the sun. Taking a shower, there was something, aah, bothering me on the back side... As I stood on the edge of the tub to take a look, uh oh, there was a CRAB attached and it WOULD NOT get off...

Anyway, it's long gone now... The moral of the story is you have to watch your backside, even on the beach... Maybe that will lighten your day...
Cathie
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