HI Megan,
About the nerve/muscle biopsy......I had it in June and it's still 'tender'. I have a 4 1/2 scar on the back/outside of my left ankle. It's not an easy surgery. My ankle swelled for 2 months........which my dr. said is normal with this surgery. I have a little numbness on top of my foot and down under my foot.....but I have some feeling coming back there.
I am very happy that my dr. suggested the biopsy after all the other tests came back ok.....he didn't give up on me........many people can't say that.
Don't give up Megan.....Hopefully your gp will suggest a different Neuro....one who knows exactly what you need. Best Wishes!

While I don't know a great deal about neuropathy (I am mainly learning from this forum and its links), I do agree that a GTT would be a good idea if you haven't had one before. It's not pricey, it's not invasive, and if it's negative, you can say you have ruled out diabetes.

When I went to an endocinologist for a goiter, she suggested a GTT pretty much as an afterthought. Surprise! We found out I was diabetic in addition to hypothyroid.

While it can be frustrating to not know what you have, it can be quite helpful to know what you DON'T have.

Good luck on your quest to find a neuro with a brain.

fanfaire

--here are some good links to possible causes of small-fiber neuropathies:

http://www.neuro.wustl.edu/neuromusc...ory-small.html

http://www.neuro.wustl.edu/neuromuscular/time/hsn.htm

As you can see, there are a large number of hereditary/genetic conditions that involve axonal deterioration/loss. This includes things like celiac disease.

The most common acquired axonal neuropathy is from diabetes, but there are plenty of others from autoimmune causes, and a number from toxic exposures or infections. For the large number of people with idiopathic acquired syndromes, autoimmune mechanisms through post-infectious molecular mimicry are the strongest suspicion.

Hi megan I think I am going to be going down the same path as you, I have a feeling my neurologist is going to give up after my emg test,I may be wrong, I have to wait until around January for the test,I will post my results and what the neurologist says when I know. By the way I was prescribed amitriptyline by my doctor a few weeks back but I haven't taken it yet...