Your post made me laugh,and I appreciate it very much. It's exactly as you say. LOL!

Also thank you to those who sent me a PM, I appreciate it.

Im not sure what SF PN is but I have PN related to diabetes and I too twitch...A LOT somedays....not at all some days. Although it panicked me at first......I have learned to live with it as it is not painful for me, just annoying (and probably a source of humor to others when its going on ini my face!)

--just refers to "small fiber": those nerves that are sensory and/or autonomic and only lightly sheathed, or not at all sheated, in myelin (mostly the latter).

A "samll-fiber" neuropathy--very common for people suffering from vascultiis, autoimmune conditions, or diabetes/impaired glucose tolerance--is simply one in which those are predominantly involved. Since these nerves subsume the sensations of pain and temperature, small-fiber neuropathies typically result in nerve pain, numbness, and temperature disruption sensations.

Beta blockers mask low blood sugar. Global twitching is found in 70% of patients with hypoglycemia.

Do you twitch more when hungry? (time intervals away from meals?)

I am a twitching machine! You name it, if it's a body part containing a muscle, it has probably twitched uncontrollably at some point. The worst areas are below the knees in my calves and the arches of my feet.

fanfaire

I too twitch all over. Two weekends ago I was twitching so bad that I was literally lifted off my bed from about 1/2-1". My whole body! It hurt, so I am not sure if this was a normal twitch or if my body went into some spasm. Usually the twitches don't hurt, just annoying. But when my whole body did that, it HURT! I guess it could have been a spasm, but I have never heard of a whole body spasm.

Has anyone else had something like this/or know of someone who does this? I have not been dx with PN as of yet. Could this be the result of PN?

Thank you for any suggestions/ideas/comments in advance.

M

for me, it comes and goes...BUT I'm beginning to think it mite be connected with getting even a little bit de-hydrated. For me, that is. Try and make that sort of connection, and if it is...just glurg more water than you thot you ever needed for a few days and then find your 'balance'.
Can't hurt to try? - j

PS at times it can get bad - so bad that it wakes up the DH? Not often mind you, but it's at those times it hits home that what I've got 'ISN'T' normal.

I have had fasciculations for over a decade. It seems it comes in spurts and can occur all over. I have had them in the most unusual places. I assume it is part of the small fiber neurop. I have not really found anything that influences it, but then again, I haven't undertaken any real study of it. I may be incorrect, but it must involve some motor nerve activity, as a fasciculation is movement, not just sensory. I can see my muscles moving. Perhaps the sensory nerve is overactive and the result is signalling the motor nerve to contract the muscle. The generic term twitching can also imply a singular unintended movement of a body part, like a jerking. I get those too.

The docs don't really seem to understand this condition all that much, especially the idiopathic, so, I just assume most of my oddities are due to the condition.

When I was on narcotics for pain I had myoclonus. Sudden noises or surprises would make my entire body jump, one giant jackknifing twitch. But on a lesser scale, it was evident brief movements of large muscles groups where there'd be a big "contract" and then a slower "relax". Like, my ankle might suddenly twitch up, then gradually go down. Then an arm, a finger, my head. They fit the description myoclonus, which is associated with opioid painkillers.

Are you one pain meds?