Thanks Aussie99,

Brian did direct me to a neuro in Melbourne who he has found to be competent. My appointment is in December. However I have been called up twice in the past week when cancellations came up at very short notice but was not able to avail myself of either....so hopefully third time lucky! I'm carrying around my referral and results folder with me wherever I go, as well as, my mobile stuck in my belt or pocket so I don't miss any calls from here on!!

Yeah I've wondered about some autonomic involvement. When I mentioned that to the first neuro I went to, she said " oh no, you would be having postural hypotension". Well for starters she didn't ask me if I was having any postural drops (which I have had for many years because of my salt-losing adrenal condition), so that was not something I would have mentioned to the neuro as it's part of my life and not a new symptom. From my reading, autonomic effects can be a range of things and not necessarily in a preset order with postural hypotension being the first on the list!!! So I didn't understand her closure on that subject.

I'll look up Myasthenia Gravis when I have a few minutes. I'm currently brushing up my knowledge on Coeliac Disease and learning heaps about it and the testing required. Even in the past ten years big advances have been made with Coeliac diagnostics and understanding, especially regarding it's prevalence in adults. Also Coeliac Disease's relationship to B12 deficiency. I'm assuming everyone who has a B12 deficiency diagnosed (especially when younger) eg. under 60 years of age is getting tested for CD!!!!

I do hope that you have had no more episodes of the Trigeminal pain Aussie99. I'm sure you are quite tentative about having a repeat episode!!!! Sounded horrible!

a disruption in the autonomic system can present as anything. It is not 'Classic autonomic PN', but more like dysautonomia.

No more episodes of TN as yet. (fingers crossed)