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Old 10-29-2007, 03:02 PM #11
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cyclelops cyclelops is offline
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Join Date: May 2007
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
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Hey Billye

Go ahead and vent...I think every one on here listens.

Anyway, one thing to consider, is that neuropathy does affect joints. Joints are innervated, tendons and ligaments are innervated, as of course are muscles....any one of these things gets off and you have joint dysfunction. You should see my hands....my ankles and feet are going too, and I have no rheumatoid markers. For me, it is something else, and it feels so darn much like bone problems, but a loss of proprioception makes joints unstable and they wear down leaving deformity, swelling and pain.

I gave in and took my free samples of Lyrica, and guess what, insurance won't cover it. It helps a tiny bit. I tried Neurontin, which they do cover and my husband almost left (not really but I do not know how he puts up with me)...I was a witch....I wonder what Lyrica costs????

Anyway, I have additional testing coming up, thanks to doing a huge genealogy that took up 6 pieces of tag board (just my paternal grandmother's side). Yes, they were an obsessive compulsive lot of people to keep those kinds of records, and some of that OCD was passed on to me, for undertaking this kind of genealogy. If it gets me to a diagnosis, great, if not, at least it kept me busy. I will let you guys know what we find, and don't find. But it is important to have someone listen....we hear ya.
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