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Hi Billye, I'm glad the info from the bone doc helped. His nurse was very upset to learn about you, and promised to find out whether he has someone in Dallas for you or not. She was really helpful. I'm wondering if you'd send me a copy of your CT scan. I think I might be able to get them to actually look at it and come up with a referral after seeing it. I think it's going to be dramatic enough that it might stir them. This is a practice devoted solely to osteoporosis and healing bones. The nurse said it's possible I've had some healing from the Forteo in the two months I was on it. She was both disappointed and happy that my symptoms cleared, and she's setting me up for some more tests of bone function, a CT of my spine to see if ther's been any healing, and then, maybe back onto Forteo once every few days, rather than daily.
The doctor operates on people with spontaneous fractures 2 - 3 days a week. When he told me that, I was floored, and I asked how that was possible. His answer was, with lots of glue and cement. So maybe you're a candidate for that. While serum calciums are followed with Forteo, his protocol is only once, I think. It shouldn't b elevated for more than a few hours after the injection.
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LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
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