[daniella]

Ok. So this was another pain doc apt. He is also specializes in rsd. Now the one I saw in Cleveland said I need a catheter so I could do extreme pt. Then the one in ucla said a scs. Now this doc who deals with rsd wants to try a epidural nerve block to see how I respond to see if it is rsd. The docs I have seen thought it may be similar to rsd because of my high pain level though no change in color etc. I asked him too about fibro and he said if it were that he could do some lidocaine I think infusion. I gave this doc all my records which he didn't look at or ask about my health background. He just asked how this started. I tried to be organize and represent myself well.I started to ask my list of ?'s and he said he would ask the ?'s .I did get to ask some of my ?'s after I pushed. I asked about there being a connection between my out of it and chest pressure. Also that I am so sensitive like I hurt my back and now it goes up and down so much. Also all the infections like eye and ear.How my pain is up and down and when I'm on them so much about damage which he said its not too and I need to be on them. He really only wanted to deal with legs but he didn't look at them or have me take off my sock. I wouldn't allow touching cause of my pain. I asked about meds but he said I am resistant which sems to be true since I have tried neurontin,lyrica,elavil,tramadol,cymbalta,liodacin e patch,vicodin. The plan of the block,pt,and psych sounds ok but I felt unheard and really rushed and like he didn't even look at my test results or mri's. He also said that the other docs know little about rsd and just because I don't have all the symptoms doesn't mean it couldn't and that is what the block is for. I was curious about after the first block but he said he didn't want to discuss further till after the first. You know at the start of this I would of done anything to take away my pain. Now with multiple dx's and docs wanting to do different things I'm confused. The doc even asked me why my eyes were bugged and I said i just have so many opinions. I drove more then 90 min each way and they spend so little time. He said there is no side effect other then infection. Is this true because the catheter and scs doc seemed to say the same and that turned out untrue. I have had a horrible week and now have an eye infection which the doc made worse so I had to go back and maybe again which doesn't help this with docs and mistakes. Also all the things to now between the meds,pt,nerve block in my foot has made things worse or other side effects I'm more apprehensive.Any ideas?

[shiney sue]

You have it right up in the left hand coner stressed,you have to slow down
down take a deep breath...We all know when i get stressed,I confuse
everyone..We all know your pain,but it sounds like you end up in more
pain,from all these Drs..

I tired so maybe,i'm not understanding,or I lost something when i got
sick and puter went I missed something..So my kids are leaving tommorow,
when there done with tests will read your past posts...Question why would
you go through all that ,I guess i'm not understanding sounds like your
adding to you pain,this is a not blaming you...I'm just worried,on another
post Billye told me to cut out part of pillow over my tailbone,something
so simple is really helping...Yesterday I wanted to pull my hair out, now
I have desided to keep it...Pain is terrible,and stress makes it worse..
When you wouldn't let him touch you ,what did he say,how did he react???
Darn you know I care...Some drs. judge by the size of records,or sounds
like he has a screw loose... him not me..Sue

[dahlek]

WE all know that you hurt, you just have to find that right doc! Hang in there, you have been thru the food processor and you are STILL writing in complete sentences after all. That in itself is one super achievement!
's - j

[daniella]

Thanks guys. I'm going to call and ask more ?'s to the doc. You know I don't even know if he does the epidural block cause he said I go across the street or if there is time I have to stay after for a short recovery. These simple things that a doc could say would make me feel more at ease. By the way anyone here have these and any problems? By the way I agree with the stress factor. I swear I'm getting wrinkles and grey hair from the stress and worry. Trying to relax though.Hugs back to you guys!

[shiney sue]

Have you talked to the rsd posts,i read them,they are a group,who are
smart,been there and done that. Bob and I have had 2 each of those
E thinkys,not awful,easier on him very tall and lean..He gave you no
information other then you go across the street to get it...Pain clinics biggest fastest growing business in Med. why people in pain...Seems like when
I was your age alot of Drs. had that,I do the talking thing..Then you get 50
treatment is a little different. Then you get older they want to kiss you on the cheek while putting you into the nursing home...Funny I was a nurse,
got to drive other nurses nuts,when there taking care of you. And look out if aDr. get's a infected hangnail..If I remember you can go home but don't
think they will let you drive....Do they have a e-mail adress perhaps it would
be better to e-mail all your questions..Works for me.. Hugs Sue.

[daniella]

Hi. You know I think I will copy this post and put it there. I have made some posts there but so many of my symptoms other then the horrible pain are not rsd. Like the change in color,hair so on. He did say you can just have one of the symptoms. I'm waiting to call back the docs. I agree at my age I feel treated differently. I also look like I'm 20 though 29 but really with what I have been through in my life 70. I would doubht highly if a 50 year old man was in his office he would of said why are your eyes bugging out of fear or say I will ask the ?'s not you. I know all here have there doc problems so I'm not taking away from you guys and I feel for you.

[HeyJoe]

Daniella i was thinking the same thing, i think that they say things to women that they would never say to a man, either that or they dont say them to me, but i think you are right

[dahlek]

I wonder if the docs don't do this 'attitude' thing to men, cause they mite deck the doc?
Tempting thought for some occasions, isn't it?
Maybe just 'visualizing' a 'deck the doc' might be enuf for a person to really assert themselves constructively! Gee this is sounding better and better!
There are times tho, like you, Daniella, when I simply CANNOT believe what I just heard! I tend to repeat it back to them with a "So, you are saying X? I just want to be sure of what you just said" Once they hear it 'verbatim' back at them, sometimes a lot of 'backpedaling' is done. OH and I'm always there with a steno pad and pen scribbling away! If I don't write it down, I'm a goner! I blame it on the meds? - j

[mrsD]

if you are still taking that Cymbalta? That makes the eyes look that way.

Effexor does it too.

Other SSRIs less so. But I used to call that "look" the Prozac eyes.

[Dakota]

Boy, Daniella, I am glad you are expressing these things, because I have been going through some very similar stuff but have been too depressed to even post. When a doctor treats me in a demeaning way, my stress level and depression go nuts. The last doc I went to for an opinion even had a receptionist who treated me bad. I'm trying to remind myself every day that I am a good, sane person who does not deserve this. I cancelled my follow up appt. with that last doc -- who was trying to railroad me into a spinal cord stimulator. I don't know, maybe it would be a good thing, but I just can't shake her demeaner of giving me the bum's rush into something that would be very lucrative for her. She declared that I would have to go off the fentanyl patch whether I did the stimulator or not, no discussion. I'm not nuts about having to use the patch, but so far it has been the only thing that has helped my pain enough to keep me from being suicidal. And I think I ought to be able to participate in decisions about my care. So...... no more of that doc. When I recover from the abusive treatment, I'll plan my next strategy.... So, I am sorry you are going through the same thing. Now, everyday, when I tell myself that I am a good, sane, reasonable person, I will say that you are, too! Maybe the good mojo will help us both! Peace be with you, honey.