I sent a PM answering your questions...but I'm new to the forum and not sure if I sent it correctlly..so let me know if you do or do not get it...

Sorry, I suppose I am odd.
I talk about any and all illnesses casually with no flinching. (just yesterday my best friend and I mentioned C-diff, and MRSA)

I can talk about voiding over a meal.

However, I'm a health care worker, and it comes with the space.

I did not know you could get a relative of it from using something like the Netti pot.
I myself have used it when I had a sinus infection, and I don't keep sterile water at home.

You learn something new every day.

you should use sterile water with a cpap machine also

I want to add a few notes on this thing about the atypical mycobacterium.
Most of the doctors I have seen over the past year are not at all sure it is of any significance at all. My sinus guy has been finding it in a lot of people, but he is the only person in the country writing about this or treating it, that I can tell. My other doctors tell me they are quite sure that if everyone was cultured for these atypicals, we'd find out that much of the population is positive. Not necessarily that everyone actually has it in their bodies, but that it's almost impossible to keep all instruments and testing materials clean of it. It's a ubiquitous organism, present in all drinking water, so we all ingest it daily. It is likely that many of us are colonized, without symptoms, and it is likely that when we get tested, unless all the materials in the doctor's office are tested, that contamination is high. That is because the organism is so darn hard to kill, including by normal disinfection. It's only killed by autoclaving, so it's on surfaces everywhere.

For me, I was sick, but it's now clear that I have had lyme for,maybe 20 years. My immune system is suppressed, and I have a lot of myofascial pain and inflammation. All these things set me up for sinus inflammation, but not necessarily from the mycobacterium, or even from fungi.

I don't know what to recommend about netty pots anymore. It seems prudent to use sterile saline, but then again, I was told that everytime we take a shower we inhale loads of mycobacterium, and this is how people with cystic fibrosis get this organism (they get lung infecgtions from it). So avoiding tap water in a netty pot might not change our exposure to these organisms at all.

Thanks for the info..I dont use a nettie pot but I do take showers so perhaps that explains where I picked it up..I do have a sinus infection (can tell by symptoms) and that is the only bug that cultured out...again thanks for all your help

After 20 years of sinus infections, 2 surgeries, and 2 months of IVs for sinus infections, I can now say unequivocally, that unless there is pus, there's not necessarily a sinus infection.

Face pain and stuffiness can be caused by myofascial disorders, and I am now getting treatment for pain that feels like sinus pain by osteopathic neck massage and acupuncture. My ENT says that I'm not infected, though I get inflamed. But then, when nerve fibers are impinged upon, they send pain signals out and can hurt in places other than the starting point.

So, unless there's clinical evidence of infection....think pain syndrome. It might lead someplace interesting.

For me, it lead to lyme disease, which causes a both neuropathy and myofascial pain. The mycobacterium and fungi were red herrings.

Thanks again for your info,,,one of the ENT's suggested that I might have some myofascial disorder but I discounted that since I too have had 2 to 3 sinus infections every year over a 15 year period (before my sinus surgery in 2000.) So I know what they are like...also I feel much better after taking a hot shower so again that leads me to the sinuses..and while my cat scan was negative the other ENT guy does see a small bit of pus when he does a physical examination..thinks that I am just sensitive to any small bit of congestion...anyway saw Dr T yesterday...I had gone to see him in 1999 before my sinus surgery..and I had forgotten but you are right he is VERY aggressive..told me he has about 30 patients with mycrobacteria infections...did some blood tests and wants to to a endoscopic exam of my sinuses which I refused...thinking that two ENT;s have been doing that constantly for the last 2 months so why would i need yet another period of torture..

You know Frank... there are some nutritional interventions that can improve membrane status. If you are interested, please PM me with a list of your drugs that you take now, and
I'll give you some ideas. Some drugs actually deplete nutrients and these are all different in actions.

If your PM is not turned yet because you are new... post back here or at the Vitamin forum and I'll answer.

Along the line of supplements, Dr Burrascano, who is THE lyme specialist, strongly recommends NT factor, which is considered a membrane stabilizer. He has other recommendations when there is neurological involvement, which can be found in the article of his I linked to, the 16th edition of "managing Lyme Disease" Oct 1008.

I don't like products like this...
There is no list of amounts in the "proprietary blend"...so you don't know what you are getting.

The ingredients listed that DO have amounts given, are nothing special except for the pantethine which is vitamin B5 that is activated.
what pantethine may help:
http://www.wellnesstrader.com/herbal...thine-benefits
All of the other "active ingredients" are pretty low. I'd bet this is expensive too!
One can have mito damage from all those antibiotics? This is by far too low an amount of carnitine to be useful.

One can accomplish alot with Flax oil and fish oil and spend much less $$.

Nice graphic though, IMO.