Oh tell the truth,C you wanted to look hot,no good so you sprayed
yourself with that fake suntan stuff...That's a hoot...What does it mean
if you turn orange???? Sue

that she's an oompa loompa

You are the very best and a joy..heh heh Sue

My dust was orange, and supposed to turn purple. Not turning purple means I either do not sense heat, or I sense it and the connections are not there to make me sweat. That makes me prone to overheating, potentially deadly, which is nice to know as I was into endurance athletics. I never could see the thrill in sunbathing....I just could never do it.

Not turning purple is generally ominous. It is 'global anhidrosis'. It means there is some very significant damage, somewhere, due to something. It is likely the small fiber neuropathy as my biopsy is positive for that, but it could also be a ganglionopathy....what is causing either of those is a mystery and under investigation.

Ironically, if I do move around and not lie still, I will sweat some, I have seen it on my clothing....but I was supposed to sweat.

Interstingly, all my ancestry is northern European, and one quarter of it is from central and northern Sweden, extremely pure, homogeneous, can't get more Swedish, unless it came down from all sides, which fortunately for me it doesn't. I am Swedish enough to count, as the genes we are looking at are dominant, in general.

When I say north, I am talking less than 4 hours daylight maximum at this time of year (some get about 2 hours). It is dusky like. In summer the sun never really sets, it just gets twilighty. It is gone but still light. If you are from way up north, you know the 'gloam'. They also have a high incidence of several genetic diseases up there, and one, interestingly involves a polymorphism involving drug intolerance. I have no solid evidence yet, and it is cutting edge molecular biology and genetic research at this point. They thought they had it all figured out a few years ago, but, it got blown away with the genome mapping getting more sophisticated. It is a hot area of research. It has gotten me very interested in medical genealogy.

My physician advised me to look into this a while ago, but I figured it would not be this helpful. It was.

That is part of my story. Just a part.

And, my lord, the last thing I wanted any one to do was take pics of me in a paper bikini. They do that so they can feed it into a computer and microanalyze for any purple. There was a titch between my toes...that is it.

I had one pic in a swim suit in the last 5 years and it was that long ago....when I still competed, and, it was a competition swimsuit, which, thankfully is like wearing a compression stocking. They are a bear to get into though. Kind of like putting toothpaste into the tube!!

It could mean I am a Neanderthal! Perhaps a Sasquatch---no wait---lost too much hair and never had that much anway. Hey, I'm an elf, or troll, depending on the season!

You know, I would think that the genetics of northern climes would dictate the human to have a ton of hair....instead, Saami, Inuit, and other circumpolar people, tend not to be that hairy. Eye color can't be tied to the sun either, as the indigenous of Scandinavia have blue, green and brown eyes. The Inuits I believe all have brown eyes. If my folks immigrated to that area it was very early, likey before the year 1000, as I have records dating into the 1400's and I believe one church has some into the 1300's but I have to go there to get those...it is in Sidensjo, Vasternorrland. Some branches may be 'indigenous'. I can't really find out, as to do that you need maternal mitochondrial DNA....this is my dad's side, his mother's side. I have only one living female descendant in my family who carries her mitochondrial DNA, except for some in, where else, Minnesota....I would have to locate the female offspring of the female offspring of my grandmother's sisters, which is doable.

It is not as cold up there as you would think....no worse than our midwest as the Atlantic Conveyer Belt in the Ocean, keeps Europe warmer even tho it is farther north.

There are a lot of hereditary diseases, not just the hereditary neuropathies, that have adult onset, past 40's, and have peripheral neuropathy as a component, so we are exploring that possibility. There are far more possibilities than people would expect, many autosomal dominant.

This is more than interesting,only a small amount between your toes.
Has therr been any books written on the hereditary neuropathys and
medical neuropathys. My fingers hurt so trying to do a short cut.

Questions,I'm sure you have answered,
1. How old are you,feel free to ignore any or all.
2. I take it you live in Northern Mn.,if so lack of sun light,do you are other
family members suffer from SAD?? When both my son's lived
lived in Mpls,they both did..Been all relatives my 1 son married
into,but have always lived there never have..I did in Mi. grew up
there,but when I moved to Mo. it changed,my mom used to laugh
and say sun must be closer to the earth. My Aunt and Uncle and
2 of my cousins lived in Hibbing area loved it. bla bla sorry.
3. Have you thought of writing,a book on hereditary and
medical neuropathys??? I would hope so...You said you see sweat
on clothes but do you feel it at all on hands,legs,feet ect. For
instance my hands feel wet to me,but very dry to others..I hope,
this hasn't put you to sleep...Thanks so much Sue Hope we hear
fanfaire,but hope they get out,for there dinner,

Would you like to hear how many physicians looked us in the face and said "Neuropathy is not, has not and could NEVER BE inherited???

I can't even count, there have been so many. In all the 18 years since Alan first got it between his toes.

The only doctor who made any sense was at the very last neuropathy support group Alan and I attended last month.

I was sitting next to her and I said "do you know how many people I have told that Alan's mom had Guillian Barre and every single one said "oh, it can't be connected, you can't inherit Neuropathy". And this darling doctor said "I would never be so (I can't exactly remember the word she used but I know she meant to imply "I could never be so uneducated as to make that statement).

She was the only neurosurgeon I have spoken to that is doing research into the complex causes of neuropathy. And she listened....to everybody.... at that meeting.

I wish more doctors would do that.