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Old 01-06-2008, 12:43 PM #31
Curious Curious is offline
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nerves being cut doesn't mean you had pain. it can mean the inscion is numb. many of the woman i have contact with had said they have the numbness and at time pickly pains when the nerves are healing.

i had an emergancy c-section with my son. 18 years later...the line is still numb. the only pain i had was no anesthea during the operation.

i'm glad you decided to join here beth.
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Old 01-06-2008, 04:10 PM #32
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Default Yes, nerves, cut and heal, nerves 'stretched' can

also protest. I will dig up and PM you some info about this issue. When I'd had my cancer surgery [being all sort of informed as I could have been] I deliberately asked the Cancer surgeon and plastic surgeon to sever those nerves- numb they are. To be candid, my legs and arms are totally to partially numb [with total to 20% loss in sensory feel- what feeling I have is distorted, and truly not normal in any sense of the word]. Having read about others who have had similar surgeries as mine, I did not want extra 'zeeps and zaps' [as I call them] of nerves healing in an especially sensitive place? Call me chicken...I admit it. Also, if anyone tells you that you can't 'feel' an implant? Ask them if they have one! I know I have a 'not natural' aspect with it, and am aware of it constantly.
As for my decision regarding implant or not? It was purely practical. I knew I was beginning to acquire a habit of 'listing' to compensate. Since my balance was, and still is, precarious enough- it was the most pragmatic solution. Further I feel that as long as I continue immune therapy for my neuropathy condition, that any normal expected side effects would be mitigated. Should that therapy cease tho, I expect new and less fun immune complications to develop.
One key thing to consider, and this I did prior to my implant surgery is really, truly check with your insurance plan to see if any 'immune' issues, should they develop are going to be covered. This is key if your surgery is 'elective' or not.. I have to think that should a person develop such issues and they aren't covered by insurance well, you could be up a creek! This is insurance company's way 'out' for either elective or experimental surgeries or therapies...and they gotta know something we do not if that's the case. I always expect the worst and hope for the best in all and everything. I wish it were different for sure! 's - j
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Old 01-06-2008, 09:16 PM #33
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Default I don't understand what neuropathies are!

This is why I am asking these questions. At first I was ripped on because I was considering getting implants. Now finally after a few rude comments, and some nice posts, I finally get the information I was after. No, the PS never explained any of this to me. Thank you for the information.
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Old 01-06-2008, 10:02 PM #34
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Hi Undecided:

Don't know if you have discovered Private Messages yet or not, but sent you one last night.
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Old 01-06-2008, 11:00 PM #35
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Default Curious

Quote:
Originally Posted by Curious View Post
nerves being cut doesn't mean you had pain. it can mean the inscion is numb. many of the woman i have contact with had said they have the numbness and at time pickly pains when the nerves are healing.

i had an emergancy c-section with my son. 18 years later...the line is still numb. the only pain i had was no anesthea during the operation.

i'm glad you decided to join here beth.
I had a hysterectomy last year and I'm still numb from the belly button down. Very annoying!
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Old 01-06-2008, 11:04 PM #36
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Default Undecided

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This is why I am asking these questions. At first I was ripped on because I was considering getting implants. Now finally after a few rude comments, and some nice posts, I finally get the information I was after. No, the PS never explained any of this to me. Thank you for the information.
Please keep asking those questions. Be as informed as possible before making your decision. It is so important. I think these people are giving you alot of great information.

Someone said that we read things wrong because you can't hear the tone of the voice in an email. I have experienced that myself. I have mistaken many emails as being nasty when they are not and people have done the same with my posts.

I do see that alot of people tend to want to judge us for wanting implants. Don't worry about it because believe it or not, most people here understand where you are coming from. I'm one of them.

I do hope you get the info you need and realize that these devices aren't always the best for our health. They can be dangerous. Not everyone gets sick but who wants to take a chance?
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Old 01-06-2008, 11:08 PM #37
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I had a minor surgery on my kneecap and the scar area was numb for about a year and a half.
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Old 01-07-2008, 01:15 AM #38
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Default Neuropathy

Well, let me see how the best way to explain at least part of what some of us experience or have experienced with PN. Others on this site may add information (please do); there are many different aspects.

Numbness, tingling, burning-feels like you are on fire (all over in my case), pins and needles feeling-can be all over, strange neurological symptoms-like limbs jerking, muscle twitches, strange sensations running up and down the spine, face goes to sleep and sometimes the area moves from under the nose to the mouth, gums and nerves to teeth can hurt, burning mouth, blood pressure can be crazy up, down, up down, pain/strange GI symptoms because the tract doesn't work right or at all, urinary incontinency, breasts burn like fire in my case. I am drawing a blank on what else to list here, but I know there are many people here who can add information and will be happy to do so.

Neuropathies are a disease/dysfunction of the nerves which can be due to various reasons. See MrsD's post above for a better explantation...

People on our site just don't want to see you join the ranks of our unfortunate club here. Feeling miserable and not being able to work is just the pits.

Hope this will help.
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Old 01-07-2008, 11:33 AM #39
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After scanning through this thread, I wondered if maybe I was mean-sounding on the other thread she originally posted. If so, I sure didn't mean to be. I try to help people on this site if I can and sure wouldn't want her to go away when she needs some help.

Also, Beth, if you are reading this, do you have a copy of Patten's letter on your site? I have not had a chance to visit there, but as a Neurologist, he saw many of the women who first reported implant issues, maybe this would be helpful to her...

Cathie
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Old 01-07-2008, 11:56 AM #40
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Default Patten's letter

I found a link where I had posted Dr. Patten's letter some time back. Forgot I did that... See below for link...

Cathie

http://neurotalk.psychcentral.com/sh...ghlight=Patten
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