| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
01-23-2008, 10:28 PM
|
#11 | ||
|
|||
|
Junior Member
|
Roxie, I use to take elmiron orally but it caused some bad side effects so I instill it directly into my bladder along with marcaine and sodium bicarb. I try to do these treatments daily and they do help. However, I've gotten several bladder infections as a result of the instills and I wonder if the levaquin I've taken for the infections could have caused the neuropathy. I read on the levaquin site where neuropathy can be a rare side effect. I'm so glad the elmiron is helping you! I wish you the best of luck also!
|
||
|
 Reply With Quote
|
|
01-23-2008, 10:35 PM
|
#12 | |||
|
||||
|
Member
|
Elsie,
That's great that you can do the instills......I've never had the guts to try that. I'd never heard that about Levaquin......but I don't doubt it. So many things we take cause so many side effects.....and then we start mixing drugs.....and who knows what all that does to the body.....it can't be a good thing! I know I'm lucky to be able to take Elmiron without all the side effects... and never did loose my hair and am SO thankful about that! I do wish I knew what caused my Neuropathy......but guess I'll never know 
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
|||
|
|
Reply With Quote
|
|
01-23-2008, 11:55 PM
|
#13 | ||
|
|||
|
Senior Member
|
Susan I just love those slippers they don't hurt,and these Drs.
in the hospital all they do is repeat same questions .Put it in the puter and read it..Roxie I wish I knew,we could all get rich and get out of this place. Wait a min. did I just sing a song...:confused Hugs Sue |
||
|
|
Reply With Quote
|
|
01-24-2008, 11:22 AM
|
#14 | |||
|
||||
|
Wise Elder
|
Okay, I'll bite.
What is an Instill??? Melody
__________________
. CONSUMER REPORTER SPROUT-LADY . |
|||
|
|
Reply With Quote
|
|
01-24-2008, 11:27 AM
|
#15 | |||
|
||||
|
Member
|
Mel,
An Instill is medication put into the bladder thru a catherater.......and you do that at home yourself......OUCH!!
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
|||
|
|
Reply With Quote
|
|
01-24-2008, 05:33 PM
|
#16 | |||
|
||||
|
Wise Elder
|
You do it at home??? with a catheter??
you mean like where you place a tampon?? Oh, I think I get it. I once had bladder problems and I had to get a cystoscope, and he put a tube inside me (using water), it didn't hurt, but when he was finished, and I had to go pee, my god, the burning... Some people do this to themselves?????? I'm confused. Melody
__________________
. CONSUMER REPORTER SPROUT-LADY . |
|||
|
|
Reply With Quote
|
|
01-24-2008, 05:45 PM
|
#17 | |||
|
||||
|
Member
|
You put the cath in your urethra to put the medicine in the instillation into your bladder. Yep they do it themselves, at home......but I never had the nerve! LOL
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
|||
|
|
Reply With Quote
|
|
01-24-2008, 05:50 PM
|
#18 | ||
|
|||
|
Senior Member
|
Nope in the little hole you pee out of,that's brave and tricky. Could
do it years ago not now,but the Dr. just did...Hope this didn't offend oh the h-ll with it. Elsie your a strong person,but we all are in our own way..Hugs Sue |
||
|
|
Reply With Quote
|
|
01-24-2008, 06:39 PM
|
#19 | ||
|
|||
|
Junior Member
|
LOL! I got a chuckle out of this thread. It's really not that bad and its not painful. I think I could do it with my eyes closed!
|
||
|
|
Reply With Quote
|
|
01-24-2008, 07:14 PM
|
#20 | ||
|
|||
|
Senior Member
|
Well as a nurse i could do it with my eyes wide open,now there to dry
you wouldn't call me lol..  I might get the wrong spot,that'sa ouch...Hugs to all Sue |
||
|
|
Reply With Quote
|
| Reply |
| Thread Tools | |
| Display Modes | |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Yesterday was Sooooo Bad!! | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
| Hi, new here, brought 4yo to neurologist yesterday | Epilepsy | |||
| Yesterday .......... | Bipolar Disorder | |||
| Hi, new here.. brought my 4yo son to pedi neurologist yesterday | Tourette Syndrome | |||
| Yesterday...today...(for Tim) | Creative Corner | |||
Linear Mode
