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Old 01-28-2008, 08:45 PM #1
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Default Things just keep getting worse for me..........

(I posted this in the wrong spot earlier......sorry)

Some of you remember that I had bladder surgery in Dec. Well since then I've had pain in the right side of my bladder. I've seen the surgeon a cpl times and he's concerned. Well after hurting all weekend I saw the dr. today and he's now worried that the gizmo they put in to hold my bladder in place has punctured my bladder...or...a stitch from it is on the inside of the bladder wall. So I have to have a Cystoscope on Wed. (where he'll look inside my bladder with a scope to see if he can see the problem.) If he can fix the problem thru the scope he will. If not then I'll have to have another surgery
Also since I'm on the Prednisone right now for the lung issue I can't have the 3 hr gtt test and TRH test on Wed......now I have to reschedule after I'm off the steriods..... It's always something it seems!!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-28-2008, 10:12 PM #2
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Hi Roxie:

I am so sorry that you're going through all this crap.

All I can do is hold you hand through cyber space and give you a hug.

Hope you feel a bit better soon!!
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Old 01-28-2008, 10:36 PM #3
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Hi Roxie, i hope you have a change of luck and they can fix your problem on Wednesday.
good luck
Brian
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Old 01-28-2008, 10:40 PM #4
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Default Roxie..

I posted in the other thread, but I'll repeat in case you don't read the other one again. I'm just so very sorry you are having all of these issues and all of this pain. It's just not fair that one person has to go thru so much. And you have been through too much of it. Hopefully he'll be able to do the work thru the cystoscope and it will all be over soon.

Then maybe next time I make it to your neck of the woods we'll go on an all day shopping binge!

Keep us posted.
Billye
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Old 01-28-2008, 11:48 PM #5
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Hi Roxie:

When it rains, it sure pours, lady... I am sorry to hear about this. Bladder pain is a pretty miserable feeling... People who have never experienced this can't begin to identify with the feeling. It is just always there REMINDING you that it hurts.. I hope they have you on something to at least dull the pain.

Anyway, you have enough on your plate without another surgery. Glad the surgeon is going to attempt to fix this Wednesday.

What is the gizmo they used to support your bladder? I thought they used some kind of sling made from your own tissue. Maybe I am dreaming this up...

Thinking about you and hoping for the best,

Cathie
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Old 01-29-2008, 09:24 AM #6
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Hi Cathie, It's a litte mesh gizmo called a Mini Arc sling. I guess it's sutured in there so maybe one of the stitches went through the bladder wall or something. I too hope he can fix it all tomorrow because the last thing I want is another surgery!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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Old 01-29-2008, 11:15 AM #7
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Many hugs and this may mean nothing to you but like I said before you are my role model to keep fighting. As you know I am in a hurricane too of issues. One day at a time and I am always here for you. On the note of the fasting test it may not be a good idea or may because I don't know if it would throw the test off but could you start making some of the changes now incase you are diabetic or heading there? Melody who has made major changes I am sure could offer some ideas. It may help with your bloodwork,pain,energy,and weight. Just a thought.
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Old 01-29-2008, 11:27 AM #8
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Roxie:

I forgot to tell you that the lady across the street from me (Her name is Jackie) and she's 72 and looks 50, and still goes to work.

Well she had this bladder thing done a few years ago. She had described that they put some kind of sling thing inside her to hold up her bladder. Worked just fine.

Just thought I'd share this with you.
And here's a beautiful image to keep in your brain. Nice and calming.


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Old 01-29-2008, 11:57 AM #9
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good quote Melody, that made me chuckle. Thats how i think of medical things sometimes a lot of nonsense, but the nonsense is piling up.

I hope everything goes well for you Roxie and you get a break in health issues.
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Old 01-29-2008, 12:37 PM #10
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Default I also posted in the thread--

--but I'm adding my hopes that your bladder isn't perforated, Roxie, and they can find and repair what's causing those symptoms without resorting to an invasive surgery.

(We've got to get Roxie and Silverlady some good medical tort lawyers. Wonder if John Edwards will soon be available if his primary vote counts don't go up.)
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