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Old 03-01-2008, 09:49 PM #1
Cowcntry Cowcntry is offline
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Originally Posted by cyclelops View Post
This is a long shot and I would think your doc did test you for this. Most of the rarer sequela do not appear neurological except for transverse myelitis....there is also that osteomyelitis possibility...Like I said this is a long shot, but animal bites and scratches, with symptoms developing afterwards, are always suspect. You indicated that you had an infection and I wonder if they cultured the wound for any organism?

http://www.emedicine.com/emerg/topic84.htm

Glenn is utterly correct when he says that a lot of SFN never progresses past burning sensations in the feet, and hopefully, the disease process will stop and begin to reverse.
They did test me for cat scratch but they ruled that out. I didn't have much puss, but I was on antibiodics and that cleared it up, but my healing takes longer cause of the diabetes.

The report came back as polyneuropathy and this is what the doctor assumed that I got this from diabetes. I of course gave him my history with the diabetes... I never took care of myself until last year, so I guess I did do at least 9 years of damage to my nerves.

You don't know how bad I wish I had the SFN and it would reverse itself. But I am pretty sure this was caused by diabetes and the damage is done.

Thanks,
Michele
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Old 03-02-2008, 09:27 AM #2
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I would not wish SFN on anyone.

Small fiber neuropathy=polyneuropathy. It is very seldom reverses. I don't have diabetes, but I have small fiber neuropathy, which is polyneuropathy, because it affects more than 'one' major nerve, and I have sensory, motor and autonomic forms of it. I don't have diabetes, I have exactly the result of what happens to a diabetic, either due to my genetics or due to an anterior horn cell disease.

"Small" fiber does not imply a small problem, not just feet. I can suggest researching autonmic neuropathy to get a good idea of what small fiber neuropathy can involve, not to mention sensory and motor neuropathies.

Small fiber neuropathy develops in many diabetics and diabetes is the number one cause of small fiber neuropathy. 25% of people with small fiber neuropathy, or polyneuropathy, have no apparent reason for it, and of those 42% are thought to have untreatable hereditary PN, and the other 16% are thought to be Celiacs.

Polyneuropathy simply means more than one nerve is involved as opposed to mononeuropathy. It makes no implication on the kind of fibers involved.

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Originally Posted by Cowcntry View Post
They did test me for cat scratch but they ruled that out. I didn't have much puss, but I was on antibiodics and that cleared it up, but my healing takes longer cause of the diabetes.

The report came back as polyneuropathy and this is what the doctor assumed that I got this from diabetes. I of course gave him my history with the diabetes... I never took care of myself until last year, so I guess I did do at least 9 years of damage to my nerves.

You don't know how bad I wish I had the SFN and it would reverse itself. But I am pretty sure this was caused by diabetes and the damage is done.

Thanks,
Michele

Last edited by cyclelops; 03-02-2008 at 10:02 AM.
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Old 03-02-2008, 09:18 PM #3
Cowcntry Cowcntry is offline
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Default Sfn

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Originally Posted by cyclelops View Post
I would not wish SFN on anyone.

Small fiber neuropathy=polyneuropathy. It is very seldom reverses. I don't have diabetes, but I have small fiber neuropathy, which is polyneuropathy, because it affects more than 'one' major nerve, and I have sensory, motor and autonomic forms of it. I don't have diabetes, I have exactly the result of what happens to a diabetic, either due to my genetics or due to an anterior horn cell disease.

"Small" fiber does not imply a small problem, not just feet. I can suggest researching autonmic neuropathy to get a good idea of what small fiber neuropathy can involve, not to mention sensory and motor neuropathies.

Small fiber neuropathy develops in many diabetics and diabetes is the number one cause of small fiber neuropathy. 25% of people with small fiber neuropathy, or polyneuropathy, have no apparent reason for it, and of those 42% are thought to have untreatable hereditary PN, and the other 16% are thought to be Celiacs.

Polyneuropathy simply means more than one nerve is involved as opposed to mononeuropathy. It makes no implication on the kind of fibers involved.
I wouldn't wish SFN on anyone either. This pain is the worst that I have ever in my life have expierenced. I will be 41 in about 11 days. I know I feel like a baby when this pain comes on, but I can not help it. I have such a low tolerance for pain.

It's possible that I could have gotten something from my cat and the kitty litter when he scratched me. I don't know..... but I guess when you have diabetes and you didn't take care of your sugars for almost 10 years, then you are right the doctor will say it's from the diabetes.

All I know is the test came back as small fiber polyneuropathy and when my feet hurt, it hurts like hell.

I thank all of you for letting me vent and talking. It helps.

Thanks,
Michele
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