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Old 03-12-2008, 04:37 PM #1
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
Member
 
Join Date: May 2007
Posts: 270
15 yr Member
Default not sure either....

what these new, worsening problems are...
since I'm not Regular' poster here, some details (hope I can stay ontrack-- I lost a longer post that may've tried to address too much , but now struggling to recall & write...
like many here, my med Hx complex w/ other issues, conditions.

most of my problems began over 10 yrs ago when i was hit by car;another head injury (TBI) last year generated more... most may not be relevant to this thread so despite my TBI affects (esp Cogntive dysfuncctions) try to stay focuesed

CIDP-sensory variant was DX few years ago. Prior to that, referred to idiopathic sensory neuropathys.
other DX have been suspected (autoimmunes, MS, etc) but tests ruled out; others added some retracted (RSD) -to much to get into now

back to the issue...
past few weeks increasing severe pain, esp. knees. while pain is not new esp in these trauma sites-the intensity & manifestation is...
pain is constant w/ erractic hits of excrutiating pain-feels like being whacked w/ a board or big nails, spikes being hammered, as tho something external is stricking me. Pain is worse w/ activity, movement but does occur when still.
wonder if this is CIDP worsening, or an arthritic or ortho problem. Burning -in legs & other areas, seems to point to neuro problems.

WEAKness is another disturbing occurance. FAtigue has long been problem but this is very different. I feel like my legs, esp knees are going to give out, and often do. I"ve been falling frequently. when do walk like Gumby & each step is excrutiating.
weakness in arms, hands--dropping things , unable to pick up, etc.-- is also getting worse.

Spasms and twitches, jerks worse & frequent--in extremities and ramdon body areas. Not painful but when occur while trying to sleep, jolt me awake, w/ that startled feeling, response.
Tremors - mostly extremities esp legs & when trying to walk. but also in arms/hands.

there's more (better to start another thread or wait to see response here)

thanks again to DAHLEK & others who've shared info/Links about PN and esp CIDP .--I need to learn all can --just reading can be challenge as are other mental & cognitive functions that may be caused by TBI s or chronic intractable pain. whatever reason, hope to find ways to get thru all this...

wishing ALL the BEST
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