[HeyJoe]

http://www.beliefnet.com/gallery/rea...c_id=HOMELEAD1

http://www.beliefnet.com/gallery/chronicpaintools.html

[Silverlady]

Joe,
My computer won't open either of those links. Anyone else having problems?

Billye

[tamiloo]

They both opened for me....great info..

[HeyJoe]

the main site is www.beliefnet.com

then click on health and then pain management then ten spiritual tools for coping with pain

the second link is readers suggestions but i cant find it on the pain management page, im not sure where it comes from

[darlindeb25]

Thanks Joe, I bookmarked the site, it looks like a great site. How you doing? Very cold 2nd day of spring here, isn't it????????

[HeyJoe]

Blustery...better than snowy....hows things down south?

I posted this because i ran across it in relation to something not PN connected but i thought it might be of interest and use to some people here. Many of the things presented have been discussed here before but there are always new people who may not have heard of these things yet. Obviously these will not eliminate all pain or even begin to touch the pain of many people. Nothing has been able to touch the broken bones feeling i get standing or walking, including morphine which was administered for something else and did nothing for that pain. If it helps some people it is worth posting. I feel that it is coming to the point here that nothing pain wise can be discussed without people taking offense. It is starting to feel like a my pain is worse than your pain so dont talk about it competition which i have rarely seen on any PN boards in the last 5 years. Yes many people here are in tremendous pain that tips like this will not help. I have the utmost respect for these people and admire what they are able to do inspite of it. they are inspirational to me. There is no cure all in PN or treatment that works for everyone. This does not mean that nothing can be discussed without a degree of pain disclaimer. If something presented can help you that is great, if it wont then realize that it was not posted to make you feel worse or to minimize what you are going through.

[jarrett622]

Originally Posted by Silverlady

Joe,
My computer won't open either of those links. Anyone else having problems?

Billye

NP opening them here. Were you able to get them to work?

[Monica de Lara]

Thank you Joe. I will puit them into practice, just a question: why do cherries ease the pain???

[dahlek]

your most recent comments. Because:
1 -You are one who is well established here and many 'senior' members know you and know and respect your pain, what you have to deal with and how gracefully you appear to deal with it here in public. Newcomers do NOT know you tho and maybe a new update/intro by you could put your views into perspective. We seem to have many, many new folks in the last few months!
2- That Most forms of PN are 'CHRONIC' would that it were not. In that light tho, there are many physicians who state flatly...'You have PN-LIVE WITH IT!' -when it could be something much more as in my case and that of others here. At times, such medical lassitude can result in total disability or life-threatening issues. I can and do get a bit strident about such lassitudeinousness [is that a word?-well, you know what I mean!]
3- Yes at times, the whole 'My pain is worse than your pain' thing does come out. I certainly hope I've only rarely stated how bad that my own pain has been at times - I try hard not to be a 'lightening rod' for comparisions, as I feel that the pain for each of us has no comparisons...if there were? There would be pain STANDARDS...and the medical world is very, very far from that!
4- Taking the Pain issue a step further? Does not each and every one of us NOT feel a modicum of something more than Anger and Fear about having this pain? The whole WHY ME? and How much worse can it get? thing is constantly hanging over many, my own self included. Luck of the draw-in my estimation. But, the anger IS there and it's safer to vent it here than say, on family!
We all want this ALL to simply go away! We get conflicting input as to IF or when it might go away if ever. I do not know about you, but by the time I was ultimately diagnosed- damage, most likely permanent was done. Treatments only mediated the progressions and pains I currently had at that initial time. My doctors prevaricated as to whether it would be permanent or not. The absoluteness of some and the well, wishy-washy-ness of others certainly gave ME the impression that improvements would be minimal and likely permanent - and, that things would most likely get seriously worse in 'time'. Thanks to you and many others here I learned that ABSOLUTE was not necessarily a word that had to be accepted?
To look for, but not expect improvements, and 'stability' CAN be considered an improvement, is a good thing.
I agree with you that all here should read about the experiences of those who have other 'Chronic Pain' neuro conditions. From ALS, to MS to Chronic Pains to Fibro to TM...we all can learn from each other and gain knowledge and strength! We all have issues that 'mimic' each other soo well. To not learn from all is foolish. To not try to learn from others is downright stupid.
I truly hope that you would share more of your own wisdom and insights as to how best to live with all of this 'Stuff'!!!
As for any 'tips' working or not? Well, try it or not. I don't know about anyone else, but some things are worth a shot... The list of 'things' to try can get very long?
Please post more often, you are valuable to this 'community' even tho you don't know it! 's - j

[HeyJoe]

i absolutely agree with you that no one should accept its PN, live with it. There are many things that should be checked out before we accept that there is no know cause. Serious illnesses that can cause PN should be tested for and ruled out. It really aggravates me when i read of doctors who after a pin test or emg say that there is nothing you can do, meanwhile they may be living with cancer, diabetes, vasculitis etc. I have certainly felt anger and fear. PN is a very scary proposition especially in the beginning when you dont know what is going on and what can happen and if it is progressing rapidly. I can imagine what people with small fiber neuropathy feel when they have rapid progression throughout their bodies in a matter of days or even hours. I would be scared to death.

Being around death and ive been around plenty of it, never bothered me because they are then beyond all suffering. Its suffering people that I wish I could help or do more for. The recent message i put up here was to try to help the people who are suffering every day of their lives here by letting them know that no one is trying to hurt them further if something is put out there to read. I am very cognizant of the suffering of many people here and i i know it sounds trite but i wish that i could help them to live pain free lives but thats not possible with the current state of medical science. I do not want to make anyones life worse and i try not to.