Hello,

I am hoping some of you might have some insight for me. The tops of my feet off to the side have been swelling up like eggs. Mostly on my left foot. At times, it is really large and the pain of my PN is way up. At other times the 'humps' are smaller when my PN pain is less. It feels like some bones are broken below the two smallest toes. I asked my doctor (neurologist) and she told me that I could not have broken bones. It was the PN doing it's damage.

Today I saw my Endocrinologist (it was time for thyroid check) - I asked her and she said that the PN often causes the bones to loosen and move or dislodge a little causing this swelling deformity and pain. She told me it was impossible to do anything about it.
My legs in general have been hurting more, but I figured it was due to recovering from knee surgery (after falling).

The pain in my feet seems to be changing and this odd swelling on top creates almost a cup area from it up to the toes. If I try to bend my toes down real hard to correct it, it feels good. My husband will rub them and push up from the bottom correcting the indention and it helps too. I first thought I was having swollen lymph nodes of the feet! I know this must all sound crazy, but it is causing some true suffering.

Without rambling on, does this sound familiar to anyone here? My husband suggested going to an orthopedic doctor. Something is definitely more going on with these feet.

ML Schumacher

first. I think these doctors are good for everyday foot issues. (not complex surgeries, etc).

In order for bones to come "loose" your tendons have to change OR your
bone density has to shrink alot. When cartilage in between bones shrinks
the space between them grows and you can dislocate them. This can happen with the knee.)

Is there RED inflammation with these swellings? If there is any HEAT or redness I'd be very concerned. What is the time frame between these and your knee surgery? The fact that they change in size may mean you have blood clots down there! So infection, blood clots, these two things are serious IMO.

In any event either go to an Ortho MD or the podiatrist. I think your endo explanation is strange and not helpful!

If it were I, I'd be at the new doctor NOW.

As I agree and have experienced such 'episodes' myself.

If your thyroid #'s are normal [thyroid can do some very 'fun' things in terms of swelling of the feet, etc. when off] then DO see an orthopedic or podiatrist to watch your feet and occasionally 'wrap' them for support as needed.

Take a look at the following web site. It explains somewhat how your malfunctioning nerves aren't telling your lymph system how to work properly and that can result in swelling. For me, it's the ANKLES! They can 'puff up' if I look at them wrong! Gentle light massage of the skin/muscles all the way UP to half-way up your calves can help work out any excess fluids sometimes. I've had this done at PTherapy and do it myself now when I really need it - it works! And yes! Your shoe size can change dramatically during these 'episodes'!
http://telemedicine.org/stamford.htm

I hope this helps and let us all know what happens! - j

I totally agree with Mrs. D and Dahlek,
I wear custom fitted orthotics in my shoes now to support the bones. They started collapsing which caused major stretch on the ligaments and tendons and nerves. This caused swelling and lots of pain. The orthotics seem to be correcting this problem. The only issue I've had with them is finding shoes that will hold the orthotics. The only brand I've found besides the usual athletic shoes, is Naot. Pricey but seem to work well.

Billye

In the excellant link that Dahlek gave you click on diabetes in skin disease and almost at the bottom is a picture of a foot that has a hump. Take a look and see if it looks like yours, the caption is Charcot Foot.

Here is a site on charcot foot. http://www.epodiatry.com/charcot-foot.htm

You can go thru your search engine for pictures and many will come up.

I agree with mrsd and dahlek. Good site.

Hello - I have had lumps on my feet before. My podiatrist ordered xrays and it was a tendon that had ruptured. From what I can understand, they can just let go and curl up. He said he could do surgery but it wasn't necessary unless I was in pain from this. It does not bother me and the lump is actually gone now. I think it jumped over to the other foot for awhile. I think to some extent, this is part of the disease. My feet do not look like they use to and buying shoes that fit, are comfortable and that will actually stay on my feet is a challenge.

Good luck.

Cheryl