Neuropathy does improve

Christine Bowker · 08-07-2009, 08:24 PM

I am 67 - active - horse carriager, gardening etc. I was diagnosed with Idiopathic peripherl Neuropathy 5 years ago. Numb feet and hands and odd pains. The Neurologist put me on Gabapentin - and suggested I take B12. Not only did this not help, but I got worse. Threats of paralysis, on one time after a quiet lunch, my right leg felt as though it was being wrenched from my body. THATS IT! I thought... I went to a health shop, and got everything that would lift my health, including Lipoic Acid (by Metagenics) each tablet is 300mg - I take 2 per day - also I take Olive Leaf Extract. My GP, an honest women, said "You don't want to visit the Neurologist because he has nothing to offer you."My Dr. suggested I went to an acupuncturist. He was also a GP too. He works on me once a fortnight. I then went to a Naturopath who prescribed ACTIVE ELEMENTS 4.1 and 4.2 and 4.3. They are minerals. Finally I discovered LEPHRATAX. I have been taking this for 4 months now. GUESS WHAT? I have no pain - the numbness is receeding, I sleep well - I am gertting back to higher energy activities - I am no longer a pending cripple. Good luck to all who read this

EHorst99 · 09-10-2009, 12:15 AM

I assume that this posting from the one-time-poster 67 year old about LEPHRATAX is just an advertisement.

Has anyone else heard about this? And does it work at all?

mrsD · 09-10-2009, 06:58 AM

I looked that supplement up.

It is a long list of tiny amounts of many herbs. I don't have much faith in it. Since active principles in herbal products are very dilute using these tiny doses of whole herb seem strange to me.
3.11mg of egg shell calcium?

Here is the list:
http://lephratax.com/ingredients.html

This site says the supplier is a "problem"... first comment below the article:
http://www.complaintsboard.com/compl...04/page/1.html

If you Google Lephratax reviews you will find more (one very long disturbing blog) and only advertising.

The price for this product is a joke IMO.

lucinda 2009 · 09-20-2009, 04:06 PM

Just passing by for an update and to offer hope and to say a big thank you to this forum. Now my pain and numbness have gone and energy levels are greatly increased although I have to still rest and its fab to sleep through the night again. Thermal threshold tests also confirmed an improvement. I get the occasional pins and needles in my feet if I am run down and move off my diet. I take alpha lipoic acid, Q10 and acetyl l carnetine daily, no caffeine, no alcohol, no sugar, regular protein in my diet and lots of water and I did a course of acupuncture. In retrospect I wish I hadn't wasted my time with the traditional medical model although I had to but it only told me what I didn't have and did not deal with whatever was going on for me.

My history was

My history is that I had tiredness, pains in my wrist and numbness in feet from summer 07 and my GP said its having 2 young kids (2 and 4) and wear and tear (am 45). June 08 I was in the park and had numbness from knees down both legs to my feet and in my hands, it happened just like that. I could feel but like wearing socks and burning feelings. I was exhausted for a few months and just got thru the day but wanted to sleep the whole time. I can't let the boys sit on my lap anymore as my feet get even number and more painful or if they knock into me it sends jars of discomfort. The tiredness has got much better tho am aware of energy reserves that run out. My wrists 'go' if I pick up heavy bags, right was out for a month in january after lifting one of the boys where it was continually uncomfortable and burning. I had tests for diabetes, thyroid, mri, lyme, b12, kidney, liver, choloestrol, hep c, hiv, ssep nothing so the neuro explained the mind body link at my consultation over xmas(!) - he then did a thermal test and said I had small fibre neuropathy. 2 weeks ago he emailed to say I had anti GQ1B IGG gangliosides which are associated with a rare variant of guillan barre called miller fisher I am confused as I have none of the symptoms I have found on the net eg eye problems or ataxia or areflexia. Does anyone else have something similar please and could you recommend any treatment?
Thank you

gree · 11-17-2009, 10:00 AM

I have recently been diagnosed with "Anti Mag Anti Body Neuropathy". I have tingling all over my body, feet pain and muscle spasms. My B12 was extremely low so I am taking injections now. Is there a diet/vegetable/vitamens I can get on to help me?

My neurologiest told me to watch vatiman b6 because it would make the neuropathy worse.

Quote:

Originally Posted by LizaJane

My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.

mrsD · 11-17-2009, 11:01 AM

This type of neuropathy is rather specific.

Here is an article about it:
http://brain.oxfordjournals.org/cgi/...full/123/4/710

Its conclusion is that given the side effects of treatments, it may be best to not treat this specific autoimmune issue.

You would have to discuss this with your doctor. Your benefits would have to be weighed against the risks of the therapies.

I would add fish oil to your B12 regimen, because fish oil has some anti-inflammatory actions, and has shown some benefits for myelin repair. It is easy to take, now there are enteric coated ones, and benefits for the rest of your body too.
I would also explore quality curcumin. This spice is showing reductions in inflammation of the brain, and blood vessels. It does not appear on the list linked to below. One needs enhanced absorbable curcumin, however, not just any old type.
So if you wish to try this new powerful anti-inflammatory, post back to me and I'll give you examples to buy.

This link is for multiple sclerosis, but since they have similar myelin attacks, suggestions may apply to you too.
http://www.msrc.co.uk/index.cfm?fuse...how&pageid=772
It is a longgggg list... and you may not need all of them.

Gyrene · 11-24-2009, 12:44 PM

I've read of so many types of neuropathies that I don't know where to start. All I know is that my PM is supposedly caused by WM (waldenstroms), a very rare type of cancer of the blood that has to do with too many IgM's in my blood. Hopefully, with successful treatment of the cancer, the PM is supposed to subside as well.

I do know this, when I take my vitamins like I'm supposed to, the "bad" days aren't nearly as bad as they had been. Specifically a B complex, plus B12 extra, among others.

Right now, as I type this, there are more mistakes than there are correct words. The PN has settled in my right hand more than the left, and I spend more time making corrections than I do anything else. Sheesh ! ! ! This is so frustrating. And, me with such limited patience to boot.

The first series of Rituxan treatments for the WM did hardly nothing. From 7,900 down to 7,100. The doctor put me on a regimen of steroids once a week for 4 weeks before again starting another regimen of Rituxan. Hopefully, this will help the Rituxan do its job.

Just venting~~~~~

aeb105 · 11-24-2009, 03:14 PM

Quote:

Originally Posted by Gyrene

I've read of so many types of neuropathies that I don't know where to start. All I know is that my PM is supposedly caused by WM (waldenstroms), a very rare type of cancer of the blood that has to do with too many IgM's in my blood. Hopefully, with successful treatment of the cancer, the PM is supposed to subside as well.

I do know this, when I take my vitamins like I'm supposed to, the "bad" days aren't nearly as bad as they had been. Specifically a B complex, plus B12 extra, among others.

Right now, as I type this, there are more mistakes than there are correct words. The PN has settled in my right hand more than the left, and I spend more time making corrections than I do anything else. Sheesh ! ! ! This is so frustrating. And, me with such limited patience to boot.

The first series of Rituxan treatments for the WM did hardly nothing. From 7,900 down to 7,100. The doctor put me on a regimen of steroids once a week for 4 weeks before again starting another regimen of Rituxan. Hopefully, this will help the Rituxan do its job.

Just venting~~~~~

Lasers also show promise.

aeb105 · 11-24-2009, 03:16 PM

Quote:

Originally Posted by aeb105

Lasers also show promise.

Quote:

The intravenous laser blood irradiation
The intravenous laser blood irradiation was accomplished for the first time approximately 25 years ago in the former Soviet Union. Laser light was brought directly into the flowing blood through a one-way-catheter. By various in-vitro-tests before it could be verified that biological soft laser irradiation of white blood cells caused various positive effects, in particular expression of immunoglobulins, interferons and interleukins. After the introduction of the new method various clinical studies were published, showing additional effects on various metabolic pathways.

Improved sensitivity in patients with peripheral neuropathy: effects of
monochromatic infrared photo energy.
DeLellis SL, Carnegie DH, Burke TJ.
Gulf Coast Foot, Ankle and Wound Center, Tarpon Springs, FL, USA.
*edit*
Adv Skin Wound Care. 2004 Jul-Aug;17(6):295-300.

http://www.ehow.com/about_5036278_co...europathy.html

mrsD · 11-24-2009, 03:54 PM

aeb105,
did you have this treatment?

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