It is a good idea. I always feel weird asking people for their contact info other then email. If I do hear anything by email I will keep you updated or if anyone else hears if they could do the same.

The problem with a real life list is that there are people who would use it for not so innocent purposes. They could follow posting to know how serious the illness is and it just isn't safe for a lot of our members. While I believe it would be wonderful (sigh) to know where to locate some members in order to find out whether or not they are o.k. it would violate privacy issues. A lot of people post here feeling safe and can pour out their hearts without letting the world (i.e. doctor's) know what they think of some of them. Usually a member grows to trust someone over the years and there are ways to contact them.

Sue, we hope you are o.k.

Billye

that Sue is recovering and her old self, when I return.

HA!!! Well here I am 20 lbs liighter,and tired but healing and ,no matter how
much I said no,no,no that rehab has some very big people who said yes,,they
where giving me drugs like Cinnamon Pills,lots of b12,Vit.D, hormones and much more..I really like the hormones,makes you chase very nice looking young Physical Therapist down the hall,I always caught him after all he couldn't out run my wheelchair. lol

First and foremost I want to thank all of you for caring so much,your all are
so kind and it truly touched my heart,which is the one think they claim is
doing well..I took my puter but only 1 place one could use it. Well I wasn't
going to wait in line,why I took that wireless puter put it as close to the
biggest window I could find,ah ha I sat in the evening writing each of you
such lovely e-mails,if you didn't get them,well it didn't work I even tried standing on my head,I was told this just might work,it didn't..The next day
the Psychiatrist wondered in before brestfast,I explained if we didn't eat fast,
well we couldn't eat.so could she stop shaking my poor sore hand..She said
Sue I have been told you were standing on your head smiling with a computer clutched in your hands,well yes said I,why said she..Because I was told it would work,now believe it are not,her reply DO YOU
DO EVERTHING YOUR TOLD.. She gets paid all that money to say what
my mother said for years..Our Dr. Amy was very smart to become a Psychiatrist and our No. 1 son was very smart to fall in love with her.

I got home today,This 60 bed Rehab oh so small,but oh so good. I went in a bit before the 4th,why you ask,or may not,a Dr. well he is called something I
can't pronounce let alone spell..It's funny to talk to a Dr. with fierce Jet
lag,he had just returned from China,,giving a speech on Spinal Cord Injuries.
His eyes were trying to stay open,and I was saying things like I don't remember how many children do you have,what's there names and ages..lol
Well being my sweet self and the nurses were watching,after all he had his
head on my shoulder.ahh I woke him up and told him to have someone drive him home,we could talk tomorrow,he just said thank-you Sue,it took the nurses just a few secs. to pretend they were working..

Many things happened that were good and many that really scared me. But we are being hit by a storm,but I'm doing better,feeling stronger,and
amazed that you can go down a hall and people knew what Polyneuropathys
were ,well some of them. Thank you again Hugs to all Sue

*pounces gently on Shiney Sue* I'm sooo glad to see this post! We were worried in case you hadn't noticed.

Glad to hear you seem to be doing pretty well.

n-dimensional hyperspace! Glad you found your way out of the 'fourth dimension...or is it the fifth'?

I'd do a jig but I'd likely fall over or something.

Heaps and heaps of HUGS! - j

Hugs and yea! I am so happy to see you back to the boards. I missed your spunk and care but glad you benefited from the program. When you get a chance I would love to hear more about this program. You can email me of course too. Many hugs and hope you are settling in back home