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Old 07-31-2008, 08:01 AM #22
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Macophile Macophile is offline
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Macophile Macophile is offline
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Join Date: Jul 2008
Location: MA, USA
Posts: 284
15 yr Member
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Originally Posted by Brian View Post
Yep, it sure did.... trouble is when the nerves are repairing or trying to regenerate at first it is nearly impossible to tell the differance between worsening or repairing, once i got my sugars levels right, i had a lot of flare ups and many months after i started to notice slightly less severity of symptoms and that went on for a long time.

Thiamine [B1] helped with my burning, i took 100 mg x 3 times daily which did help some, R lipioc acid also helps some with the burning but it can drive your sugar levels down so must be very carefull if taken oral diabetic meds like Metformin as well, Benfotamine [ a very powerfull B1] has helped others as well.

When i first got these problems. one doc give me anti inflamatory drugs [ 6 celebrex daily ], & they helped. so i am not surprised that the steriods helped you.

best of luck
Brian
Hi Brian,
Ok, the B1 is interesting. I have never heard of that! I might have to try it.
As for the celebrex, I did actually try it. (I was taking it for migraines at one point...) and it made my feet worse. Don't ask me why. Incredibly weird, but what can you do. It is also interesting that it took so long for your feet to "right" themselves. Can I ask if you were full-fledged diabetic.. and for how long before you started treatment? I am wondering if there is a connection.
Thanks!
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optic neuritis, peripheral neuropathy


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