Hi again, no i wasn't classed a full blown diabetic 2, i was prediabetic , sugar levels were not high enough to be classed as a diabetic 2 but were higher than a normal reading should be, this was diagnosed by a 3 hour glucose tolerance test....... prior to this, [one of the many doc's] sent me for a fasting glucose test and told me my sugars levels were normal, " no sign of diabetes whats so ever " luckily i found a doctor who give me the proper testing [ glucose tolerance test ] and a cause was found in my case anyway, yours may not have anything to do with your elavated blood sugars but it is a real possability, amongst many other possabilities.

oh yeah, as far as i know the best way to get rid of Prediabetes, is diet and exercise, get rid of the cause, the glucose lowering drugs won't and nerves don't heal quickly, it takes many months to years.

best of luck,
Brian

Are you positive that your bowel issues are IBS? The reason I ask is that erythema nodosum and peripheral neuropathy both occur in Crohn's Disease. Crohn's is autoimmune and has many extraintestinal manifestations. Many people with CD get uveitis/iritis. I have peripheral neuropathy from CD. I have also had erythema nodosum and iritis several times.

Perhaps the GI could order a Prometheus Serology 7 test if your insurance will cover it. It is somewhat pricey if you have to pay for it on your own.

BTW, have you had a colonoscopy to rule out inflammatory bowel disease? A diagnosis of IBS is one of ruling out all other possibilities, not just relying on symtpoms. If your IBS diagnosis was made without doing a colonoscopy, then that diagnosis is suspect in my book.

Hi. Welcome to the boards though I am sorry you are having such a horrible time. I am not going to go through my story but I am a "weird" case too. I am older then you but when this happened to me 28. Anyhow been to many docs and many top hospitals with little answers. I forgot what kind of testing such as mri or emg/nc but if you have not I would push getting those. Also just because you seem to young to have an issue doesn't mean it can't happen. I am not trying to scare you but I know for myself things that have happened mostly to older people have happened to me. It may be very rare but still something I think docs need to look into though many don't. Also are you bringing your mom or dad to any apts? I think it can help cause I sometimes see a difference in how I have been treated. Nothing like an angry parent to get things done. Hang in there and if you need anything or just want an email buddy feel free. I know how scary and lonely this is.

I have to admit I have not had a colonoscopy to rule out inflammatory bowel disease. My dr. did use the process of elimination but did not take that final step.

I am pretty sure I had the urine test for Crohn's. (negitive) The doc's looked at that, as I have the erythema nodosum and peripheral neuropathy, as well as other auto-immune problems... they also said I had the right body shape...

To my knowledge there is no urine test for Crohn's disease. If that were so, then things like the capsule endoscopy [camera pill] to examine the small bowel would never had to be invented. If you have been having on and off gut issues for some time, you owe it to yourself to get a colonoscopy to check for inflammatory bowel disease. I let them tell me for 25 years that I had IBS. I was so sick of complaining about my bowel issues to the docs I stopped complaining. Then when all then other issues popped up, neuropathy, severe arthritis, EN, avascular necrosis of the hips - all caused by untreated Crohn's - my gut issues could no longer be ignored. I wish I had been more insistent.

OMG. I am so sorry. I was thinking of Cushings. (I have had so many tests.)
I looked up Crohn's again. (paying greater attention) It could almost fit my "IBS" Situation. The Gasto put me on Antibiotics. (The strongest ones available) and they worked.... as long as I was on them. I took them for over a year. (Before this I was having MAJOR bowel problems. Diarrhea almost every day- which is why my pediatrician thought I was lactose intolerant...which after they finally tested me i was not.) Now that I am off of the antibiotics again. It is not too bad. But every so often I will get a flare up, that fits. My question is: Could Crohn's cause my earlier problems... and then these now? I saw when I looked it up that it might be caused by an autoimmune problem... possible connection, maybe? I will have to ask the Dr's on the 15th. (They aren't gastro, but they might be able to help.)

Hi Brian,
Thanks for answering me. I did have a 4 hr. glucose tolerance test that said I was "barely in the range" of pre-diabetes. I then did a 2 Hr. glucose tolerance test a year or so later that said I was completely normal. And I agree, it might be the cause, or part of the cause, but because of all the other unexplained stuff, I want to push for other things too.

As for exercise, it is hard as the foot problems keeps me from moving around much, but I try to do as much as I can. As for diet, I have always eaten well, which is something that annoys me. It doesn't seem fair that I have this problem when the people who Chug nothing but soda and eat tons of sugar/candy are perfectly fine. (I know it's possible, but it's just a gripe of mine. Sorry. )

This might be a silly bunch of questions, but I was wondering what your symptoms were? I am wondering why/if diabetic peripheral neuropathy is known to be made worse by lying down, or being worse at night? Also if you experienced the sensation that it got worse with movement/being walked on? Also that if you are asleep that when you wake up is is worse for a while then calms down? I have tried looking this up, but no-where do they talk about this kind of thing. Thanks for your help!

The Rheumatologists think I have Sarcoid, or another Inflammatory Auto-Immune disease, (based on the fact I had Erythema Nodosum, and Optic Neuritis, Swelling, And Blood tests that point them in that direction, like the Ced rate being elevated for 2 years now.) They still don't seem positive it is it, but based on history they seem to think it is probable. (And I am like, you couldn't have seen this last year when I saw you?) And they also think I have Fibromyalgia.

They are going to start treatment (can't do steroids, or don't want to because I had such massive doses because of the Optic Neuritis so they are going to try Methotrexate which they say won't help with the pain as damage has already been done. It makes me feel a little hopeless though. As they have tried almost everything on me for treatment for pain and nothing seems to work well...The steroids were wonderful though.) but are waiting to check in with my Neuro.

Idk. This is confusing. If anyone has any other ideas or suggestions I am still open!

Try posting in the Sjogren's Syndrome Forum. Here is the web site: www.sjogrensworld.org

Good people there. Maybe someone can help you.

Billye